Markova I, Forbes C D, Rowlands A, Pettigrew A, Willoughby M
Int J Rehabil Res. 1983 Mar;6(1):11-8. doi: 10.1097/00004356-198303000-00002.
Twenty three adults and twenty children with haemophilia, all on self-treatment, participated in the present study. They were interviewed as to how they perceive the effects of self-treatment upon various aspects of their life. It was found that the ability to treat themselves was perceived by patients as a great improvement over their previous treatment regimes for which they had had to go to hospital. Twelve of the adult patients had participated in our previous studies concerned with the social an psychological aspects of haemophilia. The analysis of the responses of these twelve patients showed that self-treatment is perceived so positively that some of the patients' earlier perceptions were distorted to correspond with their present and more optimistic perceptions of their condition. However, the number and type of psychosomatic symptoms was found to be unchanged by self-treatment and the unemployment rate has not decreased.
23名成年血友病患者和20名儿童血友病患者参与了本研究,他们均采用自我治疗。研究人员就他们如何看待自我治疗对其生活各个方面的影响进行了访谈。结果发现,患者认为自我治疗的能力相较于他们之前必须去医院接受的治疗方案有了很大改善。12名成年患者曾参与过我们之前关于血友病社会和心理方面的研究。对这12名患者的回答分析表明,自我治疗被视为非常积极的方式,以至于一些患者早期的认知被扭曲,以符合他们目前对自身状况更乐观的认知。然而,研究发现自我治疗并未改变身心症状的数量和类型,失业率也没有下降。