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血友病患儿:相同还是不同?

Children with haemophilia: same or different?

作者信息

Logan F A, Gibson B, Hann I M, Parry-Jones W L

机构信息

Department of Child and Adolescent Psychiatry, Grantham Health Clinic, UK.

出版信息

Child Care Health Dev. 1993 Jul-Aug;19(4):261-73. doi: 10.1111/j.1365-2214.1993.tb00732.x.

Abstract

Haemophilic children's perceptions of their own social and school function and their concerns about illness and expectations for the future were compared with those of diabetic and healthy children of the same age and social background. All three groups had similar anticipations about making friends, getting married, finding satisfactory employment and having children. Haemophilic and diabetic children were no more concerned than healthy children about being ill in the future and worried less about passing an illness on to others. Haemophilic, but not diabetic, children felt they were less able to run and play than others. The small sub-group of HIV-positive haemophiliacs differed only in that none of them envisaged having children.

摘要

将血友病患儿对自身社会和学校功能的认知、对疾病的担忧以及对未来的期望,与相同年龄和社会背景的糖尿病患儿及健康儿童进行了比较。所有三组在交友、结婚、找到满意工作和生育方面都有相似的预期。血友病患儿和糖尿病患儿并不比健康儿童更担心未来生病,也较少担心将疾病传染给他人。血友病患儿(而非糖尿病患儿)觉得自己比其他人更不擅长奔跑和玩耍。一小部分感染艾滋病毒的血友病患儿的不同之处仅在于他们都不打算要孩子。

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