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泰-萨克斯病筛查诊所的社会心理方面

Psychosocial aspects of a Tay-Sachs screening clinic.

作者信息

Schneiderman G, Lowden J A, Rae-Grant Q

出版信息

Am J Psychiatry. 1978 Sep;135(9):1101-2. doi: 10.1176/ajp.135.9.1101.

Abstract

The authors administered questionnaires to participants in a Tay-Sachs screening clinic. They received 322 responses. Although the majority of the respondents expressed anxiety about the possibility that they might be carriers, most indicated that this anxiety brought them to the clinic. The authors conclude that a well-publicized and well-organized screening clinic can function successfully and deal with the issue of anticipated loss without producing mass fear. An important factor in their clinic was the fact that they were able to offer an alternative to a Tay-Sachs child through amniocentesis.

摘要

作者向一家泰-萨克斯病筛查诊所的参与者发放了问卷。他们收到了322份回复。尽管大多数受访者对自己可能是携带者表示焦虑,但大多数人表示正是这种焦虑促使他们前来诊所。作者得出结论,一个宣传到位且组织有序的筛查诊所能够成功运作,并在不引发大规模恐慌的情况下处理预期损失问题。他们诊所的一个重要因素是,他们能够通过羊膜穿刺术为泰-萨克斯病患儿提供替代方案。

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