Lauer M E, Camitta B M
J Pediatr. 1980 Dec;97(6):1032-5. doi: 10.1016/s0022-3476(80)80452-5.
A model is presented for providing home care services for children dying from cancer and for their families. Forty-two families whose children were patients at the Midwest Children's Cancer Center received home care during the first two years of this program. Variations in patient age, diagnosis, or family structure did not preclude successful participation in home care. In all families, the medical and nonmedical financial burdens of inpatient and outpatient hospital care were reduced when the child died at home. Since this program was initiated, terminal care has shifted from hospital-based medical management to nursing support in the home for the majority of children at our cancer center.
本文提出了一个为身患癌症濒死儿童及其家庭提供居家护理服务的模式。在该项目开展的头两年里，有42个家庭的孩子是中西部儿童癌症中心的患者并接受了居家护理。患者年龄、诊断结果或家庭结构的差异并不妨碍其成功参与居家护理。在所有家庭中，当孩子在家中去世时，住院和门诊医疗护理的医疗和非医疗经济负担都有所减轻。自从启动这个项目以来，我们癌症中心的大多数儿童临终护理已从以医院为基础的医疗管理转变为居家护理支持。
