Derelle J, Vidailhet M
Hôpital d'Enfants, Allée du Morvan, Vandoeuvre Les Nancy, France.
Rev Pneumol Clin. 1995;51(3):215-9.
Home care, sometimes in the technical form of home hospitalization, is essential in caring for patients with cystic fibrosis, both to avoid separating the children from their environment and rupturing their life rhythms, but also to reduce the risk of hospital contamination. Home care requires an evaluation of the disease status, good patient and family information and good coordination between the different partners. Thus the reduction in hospitalization greatly improves the quality of life in patients with cystic fibrosis.
居家护理,有时采用居家住院这种专业形式,对于囊性纤维化患者的护理至关重要,这既能避免孩子与他们的生活环境分离并打乱其生活节奏,又能降低医院感染风险。居家护理需要对疾病状况进行评估、让患者及其家属充分了解情况以及不同护理方之间的良好协调。因此,住院次数的减少极大地提高了囊性纤维化患者的生活质量。