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[Patient education in multiple sclerosis: experiences and wishes of affected patients].

作者信息

Haberfellner E M, Markut H

机构信息

Landesnervenklinik Wagner Jauregg, Linz.

出版信息

Wien Med Wochenschr. 1995;145(9):218-22.

PMID:7638974
Abstract

110 patients suffering from multiple sclerosis (MS) were asked about their experiences and their preferences concerning patient information. 85% were informed about diagnosis by physicians. The time from the occurrence of first symptoms until information about the diagnosis was 5.6 years on average. Most of our patients require frankness, but 29% would prefer to be informed only after disabilities have occurred. Contradictory statements of some patients seem to express their ambivalent feelings. It is difficult and needs a lot of sensitivity to find the best moment and the right quantity of information a patient is able to accept.

摘要

相似文献

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引用本文的文献

1
The Communication of Multiple Sclerosis Diagnosis: The Patients' Perspective.多发性硬化症诊断的告知:患者视角
Mult Scler Int. 2015;2015:353828. doi: 10.1155/2015/353828. Epub 2015 Dec 15.
2
Disclosing the diagnosis of multiple sclerosis.披露多发性硬化症的诊断结果。
J Neurol. 2005 Nov;252(11):1307-9. doi: 10.1007/s00415-005-0969-7. Epub 2005 Nov 28.