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慢性病患儿母亲所获得的社会支持。

Social support received by mothers of chronically ill children.

作者信息

Pelletier L, Godin G, Lepage L, Dussault G

机构信息

Research Group on Psychosocial, Aspects of Health (FCAR-91-ER-0699), Ecole des sciences infirmieres, Université Laval, Ste-Foy, Québec, Canada.

出版信息

Child Care Health Dev. 1994 Mar-Apr;20(2):115-31. doi: 10.1111/j.1365-2214.1994.tb00858.x.

DOI:10.1111/j.1365-2214.1994.tb00858.x
PMID:8033329
Abstract

The main purpose of this study was to describe the characteristics of the social networks and social support of mothers of chronically ill children and adolescents. The data collected also allowed for the identification of the predisposing factors to receiving low social support among the mothers. Receipt of social support was assessed according to six dimensions: source of support, type of support, perceived need for support, satisfaction with the quality and the quantity of support, as well as most valued source of support. Results indicate that mothers wanted more support than they received, particularly in the areas of emotional, appraisal, and informative support. Furthermore, spouses, professionals, and immediate family members were identified by mothers as important sources of support. Discriminant analysis showed that the probability of receiving low support increased if the chronically ill child was an adolescent, the father had a higher level of education, and the family income was middle-low. Results are discussed in terms of the implications for intervention.

摘要

本研究的主要目的是描述慢性病患儿及青少年母亲的社交网络特征和社会支持情况。所收集的数据还使得能够确定母亲中获得低社会支持的诱发因素。根据六个维度评估社会支持的获得情况:支持来源、支持类型、感知到的支持需求、对支持质量和数量的满意度,以及最看重的支持来源。结果表明,母亲们想要的支持比她们实际获得的更多,尤其是在情感、评估和信息支持方面。此外,母亲们将配偶、专业人员和直系家庭成员视为重要的支持来源。判别分析表明,如果慢性病患儿为青少年、父亲受教育程度较高且家庭收入为中低水平,那么获得低支持的可能性就会增加。针对干预措施的影响对结果进行了讨论。

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1
Social support received by mothers of chronically ill children.慢性病患儿母亲所获得的社会支持。
Child Care Health Dev. 1994 Mar-Apr;20(2):115-31. doi: 10.1111/j.1365-2214.1994.tb00858.x.
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Childhood chronic illness as a family stressor.儿童慢性病作为一种家庭压力源。
J Pediatr Psychol. 1992 Feb;17(1):33-47. doi: 10.1093/jpepsy/17.1.33.
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The mother-daughter guilt dynamic: effects of type 1 diabetes during life transitions.母女间的内疚动态关系:1型糖尿病在人生转折期的影响
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Social support and adjustment in chronically ill and handicapped children.
Am J Community Psychol. 1989 Apr;17(2):185-201. doi: 10.1007/BF00931007.
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[A study on the grief and coping pattern of mothers who have a chronically ill child].[一项关于患有慢性病子女的母亲的悲伤情绪及应对模式的研究]
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[The importance of social support to chronically ill adolescents].[社会支持对慢性病青少年的重要性]
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Mothers with chronic illness: a predicament of social construction.
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Strengths-oriented therapeutic conversations for families of children with chronic illnesses: findings from the Landspitali university hospital family nursing implementation project.以优势为导向的治疗性对话在慢性病儿童家庭中的应用:来自 Landspitali 大学附属医院家庭护理实施项目的研究结果。
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