Greenberg J S, Greenley J R, Benedict P
School of Social Work, University of Wisconsin, Madison 53706.
Hosp Community Psychiatry. 1994 May;45(5):475-80. doi: 10.1176/ps.45.5.475.
This study investigated the contributions that persons with serious mental illness make to their families according to both clients and family respondents.
The sample consisted of 725 clients with serious mental illness and 725 family respondents living in rural counties or counties with small urban areas in Wisconsin. Clients were in contact with family respondents at least three times a year; 23.7 percent of them lived with the respondent. Clients returned a questionnaire, and family respondents completed a telephone interview; both rated the amount of help the client gave in eight areas such as household chores, shopping, and companionship.
Overall, the clients, especially those who lived with their families, provided substantial help. For the total sample, clients were most likely to contribute by providing companionship; family respondents reported that 59 percent of clients gave such help. For clients who lived with respondents, between 50 and 80 percent helped by doing household chores, shopping, listening to problems, providing companionship, and providing news about family and friends, according to family respondents.
Many persons with severe mental illness play positive roles in their families. Recognition of clients' contributions by providers, researchers, and clients and families themselves could help reduce stigma and expand community opportunities for persons with severe mental illness.
本研究根据患者及其家庭受访者,调查了患有严重精神疾病的患者对其家庭所做的贡献。
样本包括725名患有严重精神疾病的患者以及725名居住在威斯康星州农村县或小城区县的家庭受访者。患者每年至少与家庭受访者联系三次;其中23.7%与受访者住在一起。患者返还了问卷,家庭受访者完成了电话访谈;双方都对患者在诸如家务、购物和陪伴等八个领域提供的帮助程度进行了评分。
总体而言,患者,尤其是那些与家人住在一起的患者,提供了大量帮助。对于整个样本,患者最有可能通过陪伴来做出贡献;家庭受访者报告说,59%的患者提供了这种帮助。根据家庭受访者的说法,对于与受访者住在一起的患者,50%至80%的患者通过做家务、购物、倾听问题、陪伴以及提供有关家人和朋友的消息来提供帮助。
许多患有严重精神疾病的人在其家庭中发挥着积极作用。提供者、研究人员以及患者和家庭自身对患者贡献的认可,有助于减少耻辱感,并为患有严重精神疾病的人拓展社区机会。