Foster L W, Berkman B, Wellen M, Schuster N
Office of Bioethics, Cleveland Clinic Foundation, OH 44195.
Health Soc Work. 1993 May;18(2):139-48. doi: 10.1093/hsw/18.2.139.
A needs assessment survey of 268 polio survivors residing in Maine explored the incidence of postpolio syndrome as well as perceived need for and access to social and health care services. A large proportion reported experiencing postpolio syndrome. Although knowledgeable of their condition, a majority perceived that they had no access to knowledgeable physicians or social and health care services and most were having difficulty coping. Findings indicate that polio survivors' self-appraisal of their illness status is related to their perceived need for and access to social and health care services. The need for community-based services, including medical, rehabilitative, educational, and social work services, is indicated.
一项针对居住在缅因州的268名小儿麻痹症幸存者的需求评估调查，探究了小儿麻痹后遗症的发病率以及对社会和医疗服务的感知需求与获取情况。很大一部分人报告称经历过小儿麻痹后遗症。尽管了解自己的病情，但大多数人认为他们无法获得专业的医生以及社会和医疗服务，并且大多数人在应对方面存在困难。研究结果表明，小儿麻痹症幸存者对自身疾病状况的自我评估与他们对社会和医疗服务的感知需求及获取情况有关。这表明需要提供包括医疗、康复、教育和社会工作服务在内的社区服务。
