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对美国中西部皮肤科医生进行的关于多发性非典型痣患者临床遗传学方面的问卷调查。

A questionnaire survey of Midwest dermatologists on the clinical-genetic aspects of patients with multiple atypical nevi.

作者信息

Fusaro R M, Johnsen L R, Hoden R H, Lynch H T

机构信息

Department of Preventive Medicine and Public Health, Hereditary Cancer Institute, Creighton University School of Medicine, Omaha, NE 68178.

出版信息

Nebr Med J. 1993 May;78(5):132-7.

PMID:8316319
Abstract

Midwest dermatologists minimally initiate or carry on in-depth genealogical investigations of patients with the cancer associated genodermatosis, the familial atypical multiple mole melanoma (FAMMM) syndrome. Their conceptualizations of the FAMMM syndrome varies over a wide spectrum and results in a range of clinical behaviour patterns in the care of these patients. If the clinical behavior of physicians with respect to patients with the FAMMM syndrome is a valid model for deducing patterns of clinical behavior in their practices then medical schools' curricula and continuation educational programs need significant revisions to correct these deficiencies in the delivery of health care.

摘要

美国中西部的皮肤科医生很少对患有癌症相关遗传性皮肤病——家族性非典型多发性痣黑色素瘤(FAMMM)综合征的患者展开深入的家谱调查。他们对FAMMM综合征的认知差异很大,这导致在照顾这些患者时出现一系列临床行为模式。如果医生针对FAMMM综合征患者的临床行为是推断其医疗实践中临床行为模式的有效模型,那么医学院课程和继续医学教育项目就需要大幅修订,以纠正医疗服务中的这些不足。

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