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风湿性疾病患者的早期需求和期望。

The rheumatic patient's early needs and expectations.

作者信息

Samuelsson A, Ahlmén M, Sullivan M

出版信息

Patient Educ Couns. 1993 May;20(2-3):77-91. doi: 10.1016/0738-3991(93)90123-e.

Abstract

During the last few years, studies have revealed that the need for psychosocial support and concrete social services are great in the early stages of the treatment of rheumatic diseases. The ability to keep a job, to do household chores, to participate in leisure activities and to maintain social relations is clearly impaired. Anxiety and depression are not unusual and often associated with weak support from relatives, loneliness and disturbed family relations. Nevertheless, the patients report resilience and determination to cope with the impacts of illness. Crisis intervention, vocational guidance and counselling about problems concerning the disease should be available and offered to the patients. As the patients seem to be unaccustomed to talking about their psychosocial problems, an empathetic and information-seeking attitude on the part of the health care staff is essential.

摘要

在过去几年中,研究表明,在风湿性疾病治疗的早期阶段,对心理社会支持和具体社会服务的需求非常大。患者维持工作、做家务、参与休闲活动以及维持社会关系的能力明显受损。焦虑和抑郁并不罕见,且常常与亲属支持不足、孤独和家庭关系紊乱有关。然而,患者报告称自己有恢复力和决心来应对疾病的影响。应向患者提供危机干预、职业指导以及关于疾病相关问题的咨询服务。由于患者似乎不习惯谈论他们的心理社会问题,医护人员富有同理心和寻求信息的态度至关重要。

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