le Gallez P
Nurs Stand. 1993;7(39):30-4.
The impact of rheumatoid arthritis (RA) on the families of people with the disease is poorly understood. A qualitative study was undertaken on 22 patients with rheumatoid arthritis, their respective well partners and their 40 children. For most children the effect of living with a parent suffering from a painful, chronic illness was not detrimental, but a minority suffered verbal and physical abuse. The disease had wide-ranging effects on sexual and working relationships, but marriage to a partner with RA did not result in a threat to the relationship for the majority. Recommendations for future practice are made.
类风湿关节炎(RA)对患者家庭的影响鲜为人知。对22名类风湿关节炎患者、他们各自的健康伴侣及其40名子女进行了一项定性研究。对大多数孩子来说,与患有一种痛苦的慢性病的父母一起生活的影响并无害处,但少数孩子遭受了言语和身体虐待。这种疾病对性和工作关系有广泛影响,但与患有类风湿关节炎的伴侣结婚对大多数人的关系并没有构成威胁。文中还提出了对未来实践的建议。