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多发性硬化症患者残疾最小记录自我评估的准确性

Accuracy of self-assessment of the minimal record of disability in patients with multiple sclerosis.

作者信息

Solari A, Amato M P, Bergamaschi R, Logroscino G, Citterio A, Bochicchio D, Filippini G

机构信息

National Neurological Institute Carlo Besta, Milan, Italy.

出版信息

Acta Neurol Scand. 1993 Jan;87(1):43-6. doi: 10.1111/j.1600-0404.1993.tb04073.x.

DOI:10.1111/j.1600-0404.1993.tb04073.x
PMID:8424310
Abstract

We tested the validity of a self-administered version of the minimal record of disability (MRD) for multiple sclerosis (MS) by measuring the agreement level between patients' self-assessment and neurologists' independent ratings. 96 MS patients and 4 neurologists took part in the experiment; the agreement level was measured in terms of the intraclass correlation coefficient (ICC). On the Kurtzke functional system (FS) the ICC ranged from 0.26 in the sensory to 0.69 in the pyramidal function; a high concordance (ICC = 0.84) was found on the expanded disability status scale (EDSS). The ICC values were above 0.70 for most of the incapacity status scale (ISS) and environmental status scale (ESS) items. A modified, self-administered version of the MRD may represent a reliable instrument for obtaining a comprehensive profile of patients' abilities.

摘要

我们通过测量患者自我评估与神经科医生独立评级之间的一致程度,测试了多发性硬化症(MS)自我管理版最小残疾记录(MRD)的有效性。96名MS患者和4名神经科医生参与了该实验;一致程度通过组内相关系数(ICC)进行测量。在库尔特克功能系统(FS)方面,ICC范围从感觉功能的0.26到锥体功能的0.69;在扩展残疾状态量表(EDSS)上发现了高度一致性(ICC = 0.84)。对于大多数失能状态量表(ISS)和环境状态量表(ESS)项目,ICC值高于0.70。经过修改的自我管理版MRD可能是获取患者能力综合概况的可靠工具。

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Accuracy of self-assessment of the minimal record of disability in patients with multiple sclerosis.多发性硬化症患者残疾最小记录自我评估的准确性
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引用本文的文献

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Self-assessment reliability in multiple sclerosis: the role of socio-demographic, clinical, and quality of life aspects.多发性硬化症的自我评估可靠性:社会人口统计学、临床和生活质量方面的作用。
Neurol Sci. 2019 Mar;40(3):617-620. doi: 10.1007/s10072-018-3589-6. Epub 2018 Oct 5.
2
A comparative analysis of Patient-Reported Expanded Disability Status Scale tools.患者报告的扩展残疾状态量表工具的比较分析
Mult Scler. 2016 Sep;22(10):1349-58. doi: 10.1177/1352458515616205. Epub 2015 Nov 12.
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Attributional style and depression in multiple sclerosis: the learned helplessness model.
多发性硬化症中的归因方式与抑郁:习得性无助模型
Int J MS Care. 2013 Summer;15(2):81-9. doi: 10.7224/1537-2073.2012-021.
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Neuropsychological aspects of multiple sclerosis.多发性硬化症的神经心理学方面
Neuropsychol Rev. 1998 Jun;8(2):43-77. doi: 10.1023/a:1025621700003.