Lozowski S L
Candlelighters Childhood Cancer Foundation, Bethesda, MD 20814.
Cancer. 1993 May 15;71(10 Suppl):3354-7. doi: 10.1002/1097-0142(19930515)71:10+<3354::aid-cncr2820711737>3.0.co;2-2.
Candlelighters Childhood Cancer Foundation surveyed approximately 300 off-treatment childhood cancer survivors as well as a comparison group of young adults who had not experienced cancer. Focused group interviews, conducted by a childhood cancer survivor, augmented the questionnaire findings. Selected results include: (1) survivors reported feeling more positive than their peers; (2) self-reported health status was more negative for survivors than their peers; (3) survivors reported more worries surrounding cancer-related illnesses. Conversely, they reported fewer general health worries than their peers. In addition, survivors need services such as information, counseling (interpersonal and career), and meetings with other survivors. These findings suggest the need for improved programming by health care providers during and after treatment, as well as the importance of a national survivor network, to address the unique needs of the off-treatment childhood cancer survivor.
烛光儿童癌症基金会对约300名结束治疗的儿童癌症幸存者以及一组未患癌症的年轻成年人对照组进行了调查。由一名儿童癌症幸存者进行的焦点小组访谈补充了问卷调查结果。部分结果如下：（1）幸存者报告称比同龄人感觉更积极；（2）自我报告的健康状况方面，幸存者比同龄人更消极；（3）幸存者报告称对与癌症相关疾病的担忧更多。相反，他们报告的一般健康担忧比同龄人少。此外，幸存者需要信息、咨询（人际和职业方面）以及与其他幸存者会面等服务。这些发现表明，医疗保健提供者在治疗期间和治疗后需要改进服务规划，以及建立全国性幸存者网络的重要性，以满足结束治疗的儿童癌症幸存者的独特需求。
