Beck-Friis B, Strang P
Department of Geriatrics, Motala Hospital, Sweden.
J Palliat Care. 1993 Spring;9(1):5-13.
Eighty-seven next of kin, 80 spouses and seven adult children, were the primary caregivers of terminally ill patients (87% cancer patients) cared for at the hospital-based home care (HBHC) unit of Motala Hospital during 1989-1990. All of the patients died in their homes. Next of kin were asked to complete self-questionnaires and to give written comments on their experiences and their perception of how the patient had felt about 13 aspects of home care provided by the HBHC staff. The response rate was 94%. In nine out of 13 areas, such as adequate information at the time of referral about the HBHC, security, support, immediate extra help when needed, high quality of nursing, and care and pain control, 86%-97% of next of kin were very satisfied (7-9 on a 9-point scale); whereas information provided about the disease, economic support, and support given after death were very satisfactory according to 72%, 58%, and 80% of relatives, respectively. Gender and time from diagnosis to death did not seem to affect responses. Next of kin of cancer patients were generally more satisfied than next of kin of other terminally ill patients. A total time of care of more than 60 days (median time) was associated with significantly more positive responses. Older spouses were significantly more satisfied with the HBHC than younger ones; despite this, 99% of all next of kin would choose HBHC again in a similar situation.(ABSTRACT TRUNCATED AT 250 WORDS)
1989年至1990年期间，87名近亲、80名配偶和7名成年子女是莫塔拉医院居家护理（HBHC）病房中绝症患者（87%为癌症患者）的主要护理人员。所有患者均在家中去世。近亲被要求填写自我调查问卷，并就他们的经历以及他们对患者对HBHC工作人员提供的13个居家护理方面的感受的看法给出书面评论。回复率为94%。在13个领域中的9个，比如转诊时关于HBHC的充分信息、安全、支持、必要时的即时额外帮助、高质量护理以及护理和疼痛控制，86% - 97%的近亲非常满意（9分制中得7 - 9分）；而分别有72%、58%和80%的亲属认为关于疾病、经济支持以及死后支持方面提供的信息非常令人满意。性别以及从诊断到死亡的时间似乎并未影响回复。癌症患者的近亲总体上比其他绝症患者的近亲更满意。护理总时长超过60天（中位时长）与明显更多的积极回复相关。年龄较大的配偶对HBHC的满意度明显高于较年轻的配偶；尽管如此，99%的所有近亲在类似情况下仍会再次选择HBHC。（摘要截选于250词）
