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一个关于组织变革以改善肿瘤患者生活质量的提议矩阵。

A proposed matrix for organisational changes to improve quality of life in oncology.

作者信息

MacDonald N

机构信息

Center for Bioethics, Clinical Research Institute of Montreal, Quebec, Canada.

出版信息

Eur J Cancer. 1995;31A Suppl 6:S18-21. doi: 10.1016/0959-8049(95)00492-2.

Abstract

Educational and institutional changes are needed to improve the care of dying patients. There are four phases to a cancer control programme, and each phase stresses prevention. The fourth phase of a cancer control programme is concerned with the prevention of suffering, through impeccable management of physical and psychosocial distress. In practice, cancer control is usually addressed primarily as a biological problem, with less emphasis placed on behavioural aspects and the alleviation of suffering. The principles of symptom control and the management of psychosocial issues have been defined by the palliative care movement. However, this body of knowledge tends to be cocooned within palliative care programmes and associated journals and textbooks. As exemplified by recent advances in cancer pain management, symptom control research is a promising area for development. However, the promise is not matched by priority assignment and idea implementation. This article offers proposals for specific changes in the structure of university and cancer programmes, and revision of legislative policies which will enhance the care of patients who depend upon our interest in the fourth phase of cancer control, the prevention and relief of suffering.

摘要

为改善临终患者的护理,需要进行教育和制度变革。癌症控制计划有四个阶段,每个阶段都强调预防。癌症控制计划的第四阶段关注通过对身体和心理社会痛苦的完美管理来预防痛苦。实际上,癌症控制通常主要被视为一个生物学问题,而较少强调行为方面和痛苦的缓解。姑息治疗运动已经定义了症状控制和心理社会问题管理的原则。然而,这一知识体系往往局限于姑息治疗计划以及相关的期刊和教科书中。以癌症疼痛管理的最新进展为例,症状控制研究是一个有发展前景的领域。然而,这种前景并未在优先事项分配和理念实施中得到体现。本文针对大学和癌症项目结构的具体变革以及立法政策的修订提出了建议,这些变革和修订将加强对那些依赖我们在癌症控制第四阶段(预防和缓解痛苦)的关注的患者的护理。

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