Bailey C
Eur J Cancer Care (Engl). 1995 Dec;4(4):184-90. doi: 10.1111/j.1365-2354.1995.tb00091.x.
Breathlessness has been described as an unpleasant sensation, but if it encompasses suffering, as some argue, it is much more than this. Breathlessness is also a major issue for people with cancer. Much of the effort to manage breathlessness has thus far focused on the treatment of underlying causes or on pharmacological strategies. In this paper, broader rehabilitative goals of care and treatment for breathlessness in lung cancer are addressed. Breathing control techniques have been developed to help patients with non-malignant disease to avoid breathlessness at rest or on exertion. A study is described (Corner et al., 1995) which evaluated the effectiveness of breathing retraining and psychosocial support for breathlessness in lung cancer. Breathlessness can be a frightening and powerful experience. It can symbolize a threat to life itself. In these circumstances, the goal of therapy is to alleviate loss of function and to ease the psychological burden that so restricts the individual. An 'integrative' model of breathlessness is discussed, in which the emotional experience of breathlessness is considered inseparable from the sensory experience and the biological mechanisms. Evidence is presented from a small study of the experiences of nurses working in the experimental clinic for breathlessness which suggests that the emotional consequences of breathlessness have a profound influence on how it is managed in practice. Finally, it is argued that symptoms are sometimes generalized too much. Experience is particular, not universal, and an open, accepting and therapeutic approach to managing illness has to be involved with messy and sometimes frightening emotions.
呼吸急促被描述为一种不愉快的感觉,但如果像一些人所主张的那样,它包含了痛苦,那就远不止如此了。呼吸急促对癌症患者来说也是一个主要问题。到目前为止,应对呼吸急促的大部分努力都集中在治疗潜在病因或药物治疗策略上。本文探讨了肺癌患者呼吸急促护理和治疗更广泛的康复目标。已经开发出呼吸控制技术来帮助患有非恶性疾病的患者避免在休息或运动时出现呼吸急促。文中描述了一项研究(Corner等人,1995年),该研究评估了呼吸再训练和心理社会支持对肺癌患者呼吸急促的有效性。呼吸急促可能是一种可怕而强烈的体验。它可能象征着对生命本身的威胁。在这种情况下,治疗的目标是减轻功能丧失,减轻严重限制个体的心理负担。本文讨论了一种呼吸急促的“综合”模型,其中呼吸急促的情感体验被认为与感觉体验和生物学机制不可分割。文中展示了一项对在呼吸急促实验诊所工作的护士经历的小型研究的证据,该证据表明呼吸急促的情感后果对其实际管理方式有深远影响。最后,有人认为症状有时被过度概括了。体验是独特的,而非普遍的,应对疾病需要一种开放、接纳和治疗性的方法,同时要涉及到杂乱且有时令人恐惧的情绪。