Weiler J B
New York Hospital-Cornell Medical Center, New York, USA.
Soc Work Health Care. 1995;21(1):55-67. doi: 10.1300/J010v21n01_05.
Anonymous testing of all newborn infants in 1988 revealed that one of every 61 babies born in New York City was HIV positive (New York City Department of Health, 1988). With the availability of new treatment, HIV positive children are living longer, often into their school years, and most are able to live at home. The majority of children acquire HIV through maternal transmission. Frequently, multiple family members are HIV positive. Parents, or other caregivers, are overwhelmed by depression, anxiety and grief, and urgently need childcare assistance. Finding childcare is difficult since families are often reluctant to disclose the AIDS diagnosis to potential childcare workers. This article describes an innovative in-home respite care program for parents and caretakers of children who are HIV positive. The service is coordinated through a hospital's social work and volunteer departments. This article describes strategies to recruit, train and supervise volunteers to provide respite care for families with HIV positive children.
1988年对所有新生儿进行的匿名检测显示，纽约市每61名新生儿中就有1名艾滋病毒呈阳性（纽约市卫生部，1988年）。随着新治疗方法的出现，艾滋病毒呈阳性的儿童寿命延长，通常能活到上学年龄，而且大多数能够在家中生活。大多数儿童通过母婴传播感染艾滋病毒。通常，多个家庭成员艾滋病毒呈阳性。父母或其他照料者被抑郁、焦虑和悲伤所困扰，迫切需要儿童照料方面的帮助。由于家庭往往不愿向潜在的儿童照料工作者透露艾滋病诊断情况，寻找儿童照料服务很困难。本文介绍了一项为艾滋病毒呈阳性儿童的父母和照料者提供创新型家庭临时照料服务的项目。该服务通过医院的社会工作和志愿者部门进行协调。本文介绍了招募、培训和监督志愿者为艾滋病毒呈阳性儿童家庭提供临时照料服务的策略。
