血友病健康服务台：一种用于慢性病自我管理的交互式计算机与通信系统。
HealthDesk for Hemophilia: an interactive computer and communications system for chronic illness self-management.
作者信息
Carl F, Gribble T J
机构信息
HealthDesk Corporation, Berkeley, CA 94710, USA.
出版信息
Proc Annu Symp Comput Appl Med Care. 1995:829-33.
HealthDesk for Hemophilia is an interactive computer software application designed on the premise that successful chronic illness self-management requires information, self-care skills, on-going communication with health care providers, and user-friendly record keeping. The software was pilot tested for six months in the homes of eight hemophilia patients. The purpose of the pilot was to assess the impact of HealthDesk for Hemophilia on patient satisfaction, patient-provider communication, and user confidence in chronic illness self-management. Results from the pilot show that when HealthDesk for Hemophilia is made available to patients and their families, they use it, value it, and gain confidence in their illness self-management skills. Users also report high satisfaction with their health care providers.
血友病健康管理平台是一款交互式计算机软件应用程序，其设计理念基于这样一个前提：成功的慢性病自我管理需要信息、自我护理技能、与医疗服务提供者的持续沟通以及方便用户的记录保存。该软件在八名血友病患者家中进行了为期六个月的试点测试。试点的目的是评估血友病健康管理平台对患者满意度、患者与医疗服务提供者之间的沟通以及用户对慢性病自我管理的信心的影响。试点结果表明，当血友病健康管理平台提供给患者及其家属时，他们会使用它、重视它，并对自己的疾病自我管理技能获得信心。用户还报告对他们的医疗服务提供者高度满意。
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