Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB, Canada.
Performance Management and Evaluation, Alberta Innovates, Edmonton, AB, Canada.
Health Expect. 2018 Dec;21(6):1208-1230. doi: 10.1111/hex.12827. Epub 2018 Aug 29.
We conducted a scoping review of the tools used to measure therapeutic relationship in patients with haemophilia.
Haemophilia is an inherited bleeding disorder caused by a deficiency of a clotting factor in the blood. Therapeutic relationship is foundational to the management of patients with chronic diseases like haemophilia. A reliable and valid measurement tool for assessing therapeutic relationship is needed to evaluate the quality of care received by these patients, and to rigorously study the association between therapeutic relationship and the outcomes of treatment.
We adopted the Arksey and O'Malley framework for scoping studies. The following electronic databases were searched for studies that measured a construct related to therapeutic relationships in haemophilia care: MEDLINE, EMBASE, CINAHL, PsycINFO and Scopus. We inventoried these studies, identified the measurement tools used, and described each tool by purpose, content, measurement properties and target population. We identified gaps in the current evidence and directions for future research.
There were 253 unique records retrieved in the search, and twenty studies were deemed relevant. Ten measurement tools were identified. None of the tools measured therapeutic relationship as a single entity; however, six tools measured constructs considered part of patient-provider relationship (eg trust, communication, working alliance). There has been little validation testing of these tools in haemophilia patient populations.
There is a need for a validated tool for measuring therapeutic relationship in the care of patients with haemophilia. This review provides a foundation for future research in this area.
我们对用于测量血友病患者治疗关系的工具进行了范围综述。
血友病是一种遗传性出血性疾病，由血液中凝血因子缺乏引起。治疗关系是血友病等慢性病管理的基础。需要一种可靠和有效的测量工具来评估这些患者所接受的护理质量，并严格研究治疗关系与治疗结果之间的关联。
我们采用了 Arksey 和 O'Malley 框架进行范围综述。在以下电子数据库中搜索了与血友病护理中治疗关系相关的测量结构的研究：MEDLINE、EMBASE、CINAHL、PsycINFO 和 Scopus。我们对这些研究进行了编目，确定了所使用的测量工具，并通过目的、内容、测量特性和目标人群来描述每个工具。我们确定了当前证据中的差距和未来研究的方向。
在搜索中检索到 253 条唯一记录，其中 20 项研究被认为相关。确定了 10 种测量工具。这些工具均未将治疗关系作为单一实体进行测量；然而，有 6 种工具测量了被认为是医患关系一部分的结构（例如信任、沟通、工作联盟）。这些工具在血友病患者人群中几乎没有经过验证测试。
需要一种经过验证的工具来测量血友病患者护理中的治疗关系。本综述为该领域的未来研究提供了基础。
