Zippin C, Lum D, Hankey B F
Department of Epidemiology and Biostatistics, School of Medicine, University of California, San Francisco 94143-0746, USA.
Cancer. 1995 Dec 1;76(11):2343-50. doi: 10.1002/1097-0142(19951201)76:11<2343::aid-cncr2820761124>3.0.co;2-#.
To ascertain the quality of data entering a population-based reporting system, an essential requirement is to study levels of completeness of case-ascertainment and reporting. This study represents an effort to quantify completeness of case reporting in the SEER (Surveillance, Epidemiology, and End Results) Program of the National Cancer Institute.
Hospitals in each of the participating SEER areas were stratified according to their annual hospital cancer caseload for the year 1987. Within each caseload stratum, a random sample of hospitals was selected for inclusion in this study. Files in the medical record, pathology, and radiation oncology departments in each hospital were reviewed for SEER reportable cases. These cases were then matched against SEER case listings to identify unreported cases.
The crude estimated completeness of reporting for 1987 in the six participating SEER areas was 97.7% and the registry-caseload standardized rate was 96.8%. Variation was noted by SEER registry, hospital cancer caseload, and casefinding source (hospital department). Three-quarters of unreported cases were of invasive disease and one-fourth were in situ, primarily of the cervix uteri.
There is variation in completeness of casefinding among SEER registries, hospital size, and hospital department source. Additional factors that appear to be related to case ascertainment are cancer site or type and who performs the casefinding function (hospital registry or central registry staff).
为确定进入基于人群的报告系统的数据质量，一项基本要求是研究病例确诊和报告的完整程度。本研究旨在对美国国立癌症研究所的监测、流行病学和最终结果（SEER）计划中的病例报告完整性进行量化。
根据1987年各参与SEER地区医院的年度癌症病例数对医院进行分层。在每个病例数分层内，随机抽取医院样本纳入本研究。对每家医院的病历、病理和放射肿瘤学部门的档案进行审查，以查找SEER可报告病例。然后将这些病例与SEER病例清单进行比对，以识别未报告的病例。
1987年六个参与SEER地区报告的粗略估计完整性为97.7%，登记处病例数标准化率为96.8%。不同SEER登记处、医院癌症病例数和病例发现来源（医院科室）存在差异。四分之三未报告的病例为浸润性疾病，四分之一为原位癌，主要是子宫颈原位癌。
SEER登记处、医院规模和医院科室来源之间的病例发现完整性存在差异。似乎与病例确诊相关的其他因素是癌症部位或类型以及进行病例发现工作的人员（医院登记员或中央登记处工作人员）。
