Perry J A, Olshansky E F
School of Nursing, University of British Columbia.
West J Nurs Res. 1996 Feb;18(1):12-28. doi: 10.1177/019394599601800102.
Findings of a qualitative analysis of several members of a family in which one member has Alzheimer's Disease (AD) support the notion that differences in how each family member defines and makes meaning of the situation have consequences for the family as a unit. Ten in-depth individual and dyadic interviews of five available family members were conducted during a period of 18 months. Data support the finding that each member of the family experienced a similar process of coming to terms with changes in the person who has AD. This process consisted of three stages: identifying how the person with AD was the same as he was before, as well as how he was different, prior to disease onset; redefining the identity of the person with AD; and rewriting one's relationship with the person with AD. This study supports both Knafl's and Deatrick's concept of family management and Patterson's concept of family meaning.
对一个有成员患阿尔茨海默病（AD）的家庭中多名成员进行定性分析的结果支持了这样一种观点，即每个家庭成员对这种情况的定义和理解方式上的差异会对作为一个整体的家庭产生影响。在18个月的时间里，对五位在世的家庭成员进行了十次深入的个人访谈和二元访谈。数据支持了这一发现，即家庭中的每个成员都经历了一个类似的过程来接受患有AD的人的变化。这个过程包括三个阶段：确定患有AD的人在疾病发作前与以前相比哪些方面相同，哪些方面不同；重新定义患有AD的人的身份；以及重新书写自己与患有AD的人的关系。这项研究支持了克纳夫和迪特里克的家庭管理概念以及帕特森的家庭意义概念。
