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母亲和父亲如何看待为残疾儿童提供的专业照料。

How mothers and fathers view professional caregiving for children with disabilities.

作者信息

King G A, King S M, Rosenbaum P L

机构信息

Thames Valley Children's Centre, London, Ontario, Canada.

出版信息

Dev Med Child Neurol. 1996 May;38(5):397-407. doi: 10.1111/j.1469-8749.1996.tb15098.x.

Abstract

The authors compared mothers' and fathers' perceptions of professional caregiving, using the MPOC, a self-administered questionnaire for parents. The authors looked at the aspects of caregiving 128 couples judged to be important, their perceptions of the actual caregiving received from health professionals and their stress. The data, from a relatively large sample of intact families, indicated that there were more similarities than differences between the mothers' and fathers' replies. Both valued the enabling and partnership aspect of caregiving most highly. Only one difference in reported experience was found: mothers reported experiencing significantly more coordinated and comprehensive care than did their spouses. The clinical implications of the findings are discussed, particularly with respect to the involvement of fathers in clinical intervention, and the belief that fathers are uninterested in their children's care.

摘要

作者使用MPOC(一种针对父母的自填式问卷)比较了母亲和父亲对专业护理的看法。作者研究了128对夫妇认为重要的护理方面、他们对从医疗专业人员那里获得的实际护理的看法以及他们的压力。这些数据来自相对较大的完整家庭样本,表明母亲和父亲的回答之间相似之处多于差异。双方都最看重护理的赋能和伙伴关系方面。在报告的经历中仅发现一个差异:母亲报告称,她们比配偶经历了明显更多的协调和全面的护理。文中讨论了这些发现的临床意义,特别是关于父亲参与临床干预的问题,以及认为父亲对孩子的护理不感兴趣的观点。

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