Ablon J
Medical Anthropology Program, Department of Epidemiology and Biostatistics, University of California, San Francisco 94143-0850, USA.
Soc Sci Med. 1996 Jan;42(1):99-109. doi: 10.1016/0277-9536(95)00076-3.
This paper explores differing patterns of gender response to neurofibromatosis 1 (NF1), a neurological genetic disorder. Perceptions of gender response expressed by persons with the condition and research findings about lifestyle and attitudinal differences related to the lived experience of coping with the condition and its consequences are discussed. Possible explanations for the causes of major social lifestyle differences between the genders are suggested. The data presented here have resulted from interviews with 30 affected individuals and parents of affected children recruited through NF support groups and from the caseloads of the Genetics Departments of two metropolitan hospitals.
本文探讨了对神经纤维瘤病1型（NF1，一种神经遗传性疾病）的不同性别反应模式。文中讨论了该疾病患者所表达的性别反应认知，以及关于与应对该疾病及其后果的生活经历相关的生活方式和态度差异的研究结果。文中还提出了造成两性之间主要社会生活方式差异的可能原因。此处呈现的数据来自对30名受影响个体以及通过NF支持小组招募的患病儿童家长的访谈，以及来自两家大都市医院遗传学科的病例资料。
