Katz A
Faculty of Nursing, University of Manitoba, Winnipeg, Canada.
J Assoc Nurses AIDS Care. 1996 Jul-Aug;7(4):51-60. doi: 10.1016/S1055-3290(96)80058-6.
HIV infection affects the lives of hundreds of thousands of North Americans. The experience of those infected is one of enormous upheaval. An HIV diagnosis can disrupt both daily life and the ability to plan for the future. Central to this experience is the uncertainty of a disease with vague symptomatology, changing medical management, and social stigma. This qualitative study explores the experience and consequences of uncertainty in the lives of 10 people with HIV infection. In-depth focused interviews were conducted to explore uncertainty after HIV diagnosis. Findings reveal that individuals living with HIV infection form a new perspective on life, which is maintained through five core experiences: surviving the HIV diagnosis, taking care, living in the present, seeking support, and appreciating the positive. Each core experience is comprised of a number of actions used by the individual to formulate and maintain the new perspective on life.
艾滋病毒感染影响着数十万北美人的生活。感染者的经历是巨大的动荡之一。艾滋病毒诊断可能会扰乱日常生活以及规划未来的能力。这种经历的核心是一种症状模糊、医疗管理不断变化且存在社会污名化的疾病所带来的不确定性。这项定性研究探讨了10名艾滋病毒感染者生活中不确定性的经历及其后果。通过深入的聚焦访谈来探究艾滋病毒诊断后的不确定性。研究结果表明，艾滋病毒感染者形成了一种新的生活视角，这种视角通过五种核心经历得以维系：挺过艾滋病毒诊断、照顾自己、活在当下、寻求支持以及感恩积极的方面。每种核心经历都包含个人用来形成并维系这种新生活视角的一系列行为。
