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卵巢癌知情同意的实证方法。

An empirical approach to informed consent in ovarian cancer.

作者信息

Feldman-Stewart D, Chammas S, Hayter C, Pater J, Mackillop W J

机构信息

Department of Oncology, Queen's University, Kingston Regional Cancer Centre, Ontario, Canada.

出版信息

J Clin Epidemiol. 1996 Nov;49(11):1259-69. doi: 10.1016/s0895-4356(96)00212-0.

Abstract

The study was designed to define and compare the professional and the reasonable-person standards for provision of information to ovarian cancer patients, and to determine if patient information priorities could be anticipated by surrogate patients. Physicians treating ovarian cancer patients, women treated for the disease, and well lay women imagining themselves to have the disease used a visual analog scale to judge the importance of 57 questions that they might want answered before treatment decisions are made. On the basis of median importance scores, all groups judged questions relating to life expectancy as most important. Overall, judgments of the patient groups agreed well with one another; doctor-patient agreement was significant but smaller than between-patient agreement. Predicting an individual's judgments from his/her group, however, was very poor for all groups. Life experience and demographic characteristics rarely improved our ability to predict an individual's judgments.

摘要

该研究旨在界定并比较向卵巢癌患者提供信息的专业标准和合理人标准,并确定替代患者是否能够预见到患者的信息优先事项。治疗卵巢癌患者的医生、曾患此病接受过治疗的女性以及想象自己患有此病的普通女性,使用视觉模拟量表来评判在做出治疗决策之前她们可能希望得到解答的57个问题的重要性。基于重要性得分中位数,所有组都将与预期寿命相关的问题判定为最重要。总体而言,患者组之间的判断彼此高度一致;医患之间的一致性显著,但小于患者之间的一致性。然而,对于所有组而言,根据个体所在组来预测其判断的准确率很低。生活经历和人口统计学特征几乎无助于提高我们预测个体判断的能力。

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