Lie H R, Lagerkvist B, Rasmussen F, Hagelsteen J, Borjeson M C, Lagergren J, Kohler L
Social and Health Administration, Municipality of Aarhus, Denmark.
Scand J Soc Med. 1995 Dec;23(4):258-64. doi: 10.1177/140349489502300407.
A study was conducted on utilization of and satisfaction with the health care and medical services among 527 Scandinavian children (aged 4-18) with myelomeningocele (MMC). Data were collected from two sources: a questionnaire distributed to parents in 1984, and patients' medical records. Comparisons were made with a control group comprised of 7,792 children. Over a period of one year, 52% of the MMC group and 6% of the controls were hospitalized. Over 3 months, children with MMC had more contact with specialist care services than had the controls, while contact with primary health care was the same for both groups. Continuity of care and satisfaction with time spent with the physician were both greater among children with MMC than in the control group. Dissatisfaction with medical services was expressed by approximately 10% of the parents of both categories. Such dissatisfaction was found significantly more frequently among Danish parents and well educated mothers. Dissatisfaction with care was not related to either the child's age or the severity of its disability. Danish children with MMC received treatment relatively more frequently from primary care physicians than from specialists. In Sweden, where satisfaction was the greatest, families with children with MMC were supported by local habilitation teams.
对527名患有脊髓脊膜膨出（MMC）的斯堪的纳维亚儿童（4至18岁）的医疗保健和医疗服务利用情况及满意度进行了一项研究。数据来自两个来源：1984年分发给家长的一份问卷，以及患者的病历。与由7792名儿童组成的对照组进行了比较。在一年的时间里，MMC组中有52%的儿童住院，而对照组中这一比例为6%。在三个月的时间里，患有MMC的儿童与专科护理服务的接触比对照组更多，而两组与初级医疗保健的接触相同。MMC患儿在护理连续性和对与医生相处时间的满意度方面均高于对照组。两类患儿的家长中约有10%对医疗服务表示不满。这种不满在丹麦家长和受过良好教育的母亲中更为常见。对护理的不满与孩子的年龄或残疾严重程度均无关。丹麦患有MMC的儿童相对更频繁地接受初级保健医生而非专科医生的治疗。在满意度最高的瑞典，患有MMC儿童的家庭得到了当地康复团队的支持。
