Berman J J, Moore G W, Hutchins G M
Veterans Affairs Maryland Health Care System, University of Maryland School of Medicine, Baltimore, USA.
Proc AMIA Annu Fall Symp. 1996:328-32.
The Internet provides the opportunity of permitting public access to large databases containing patient information that can be shared and utilized by epidemiologists, health planners, and medical researchers. Until now, large databases containing patient information have been held in strict confidence, with database access available only to approved researchers or to researchers with access limited to only specific portions of the database. The Internet Autopsy Database (IAD) consists of demographic and pathologic data from over 49,000 autopsies contributed by over a dozen academic medical institutions. Each autopsy record in the public database consists of a uniform set of demographics and SNOMED-compatible terms. To make the database publicly available, a strategy had to be devised that assured the privacy of every person included in the database. A key step involved translating the autopsy facesheets into a listing of SNOMED-compatible terms that effectively eliminated identifying terminology, replacing free text with a generic nomenclature that preserves diagnostic information. The entire database is available on the Internet at: http:@www.med.jhu.edu/pathology/iad.html
互联网提供了让公众访问大型数据库的机会，这些数据库包含患者信息，流行病学家、卫生规划人员和医学研究人员可以共享和利用这些信息。到目前为止，包含患者信息的大型数据库一直被严格保密，只有经过批准的研究人员或只能访问数据库特定部分的研究人员才能访问。互联网尸检数据库（IAD）由十几家学术医疗机构提供的49000多份尸检的人口统计学和病理学数据组成。公共数据库中的每条尸检记录都由一组统一的人口统计学数据和与SNOMED兼容的术语组成。为了使数据库能够公开，必须设计一种策略来确保数据库中每个人的隐私。关键的一步是将尸检报告单翻译成与SNOMED兼容的术语列表，有效地消除识别性术语，用保留诊断信息的通用术语取代自由文本。整个数据库可在互联网上获取，网址为：http:@www.med.jhu.edu/pathology/iad.html
