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照顾多发性硬化症患者的护士的研究重点。多发性硬化症中心联盟护理研究专业组。

Research priorities for nurses caring for persons with multiple sclerosis. Nursing Research Speciality Group of the Consortium of Multiple Sclerosis Centers.

作者信息

Gulick E E

机构信息

Rutgers, State University of New Jersey, College of Nursing, Newark 07102, USA.

出版信息

J Neurosci Nurs. 1996 Oct;28(5):314-21. doi: 10.1097/01376517-199610000-00005.

DOI:10.1097/01376517-199610000-00005
PMID:8950696
Abstract

The Delphi technique was used by the Nursing Research Specialty Group of the Consortium of Multiple Sclerosis Centers (CMSC) to obtain consensus on research priorities related to health and nursing care needs of persons with multiple sclerosis (MS) and their families and particular nursing interventions for which effective outcomes needed to be determined. Three rounds of questionnaires were used in obtaining responses from nurses affiliated with the CMSC and nurses affiliated with National MS Affiliated Centers/Clinics and the Veterans Administration Medical Centers (nonCMSC). Round 1, identification of research items, was the basis for developing a 108 item questionnaire for Rounds 2 and 3. Sixteen of 108 research items were selected by 25% or more of the CMSC or nonCMSC nurses. Among the top research priorities identified by both groups of nurses were determining effective programs to promote quality of life and reduce fatigue, stress and emotional difficulties (anger, anxiety, isolation); promote high level of functioning; and develop strategies for effective handling of cognitive deficits. Research priorities identified in this Delphi study provide direction for conducting collaborative research among CMSC and nonCMSC nurses with the aim of improving clinical practice and health outcomes of MS patients.

摘要

多发性硬化症中心联盟(CMSC)的护理研究专业小组采用德尔菲技术,就与多发性硬化症(MS)患者及其家属的健康和护理需求相关的研究重点以及需要确定有效结果的特定护理干预措施达成共识。通过三轮问卷调查收集了CMSC附属护士以及国家MS附属中心/诊所和退伍军人管理局医疗中心(非CMSC)附属护士的回复。第一轮是确定研究项目,以此为基础制定了用于第二轮和第三轮的108项问卷。108项研究项目中有16项被25%或更多的CMSC或非CMSC护士选中。两组护士确定的首要研究重点包括确定提高生活质量、减轻疲劳、压力和情绪困扰(愤怒、焦虑、孤独感)的有效方案;促进高水平功能;以及制定有效应对认知缺陷的策略。这项德尔菲研究确定的研究重点为CMSC和非CMSC护士开展合作研究提供了方向,目的是改善MS患者的临床实践和健康结局。

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