Suppr超能文献

成年肌营养不良患者应对与疾病相关的问题及生活质量

Coping with illness-related problems and quality of life in adult individuals with muscular dystrophy.

作者信息

Ahlström G, Sjöden P O

机构信息

Department of Caring Sciences, University of Orebro, Sweden.

出版信息

J Psychosom Res. 1996 Oct;41(4):365-76. doi: 10.1016/s0022-3999(96)00191-2.

Abstract

Illness-related problems and coping were examined in 60 individuals with muscular dystrophy (MD) identified in a population survey of the county of Orebro, Sweden. In addition, the extent to which coping is related to quality of life (QoL) was investigated as was the impact of impairment and disability on the relation between coping and QoL. Emotion/appraisal-focused coping was utilized by respondents more than twice as often as problem-focused coping. High QoL was significantly correlated to "Stoic acceptance" and "Tried alternative treatment." Low QoL was associated with "Helpless/hopeless," "Anxious preoccupation," "Minimization," "Social comparison," "Establishment of control over everyday life," "Performs the task with the aid of an appliance" and "Accepts help or leaves it to others." When measures of impairment and disability were included in the analysis, the impact of these measures explained the association between coping and physical QoL by 16% to 43%.

摘要

在瑞典厄勒布鲁县的一项人口调查中,对60名患有肌肉萎缩症(MD)的个体的疾病相关问题及应对方式进行了研究。此外,还调查了应对方式与生活质量(QoL)的关联程度,以及损伤和残疾对应对方式与生活质量之间关系的影响。受访者使用以情绪/评估为重点的应对方式的频率是使用以问题为重点的应对方式的两倍多。高生活质量与“坚忍接受”和“尝试替代治疗”显著相关。低生活质量与“无助/绝望”、“焦虑关注”、“最小化”、“社会比较”、“建立对日常生活的控制”、“借助器具完成任务”以及“接受帮助或将其留给他人”有关。当在分析中纳入损伤和残疾的测量指标时,这些指标的影响解释了应对方式与身体生活质量之间16%至43%的关联。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验