Edwards Victoria, Vari Chiara, Rose Michael, Graham Christopher D, O'Connell Nicola, Taylor Emma, McCracken Lance M, Radunovic Aleksandar, Rakowicz Wojtek, Norton Sam, Chalder Trudie
Department of Psychological Medicine, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom.
Department of Neurology, King's College Hospital, London, United Kingdom.
Front Psychol. 2023 Dec 1;14:1233526. doi: 10.3389/fpsyg.2023.1233526. eCollection 2023.
In adults, muscle disease (MD) is typically a chronic long-term condition that can lead to a reduced quality of life (QoL). Previous research suggests that a psychological intervention, in particular Acceptance and Commitment Therapy (ACT), may help improve QoL for individuals living with chronic conditions such as MD.
This nested qualitative study was incorporated within a randomized controlled trial which evaluated a guided self-help ACT intervention for people living with MD to explore their experiences of the intervention. Semi-structured interviews ( = 20) were conducted with those who had received ACT. Data were analyzed via thematic analysis.
There were four overarching themes. (1) Views on whether therapy sessions would help with a medical condition: participants' expectations regarding ACT varied. Some participants were skeptical about mindfulness. (2) I was able to look at things in a different way: participants described increased meaningful activity, greater awareness of thoughts and emotions and acceptance or adaptation to mobility problems. Some described improvement in the quality of relationships and a sense of feeling free. (3) Treating the body and the mind together: following the intervention participants noted that a holistic approach to healthcare is beneficial. (4) Intervention delivery: The remote delivery was generally seen as helpful for practical reasons and allowed participants to speak openly. Participants voiced a need for follow-up sessions.
Overall, the intervention was experienced as acceptable. Suggested improvements included de-emphasizing the role of mindfulness and adding follow-up sessions.
在成年人中，肌肉疾病（MD）通常是一种慢性长期病症，会导致生活质量（QoL）下降。先前的研究表明，心理干预，特别是接受与承诺疗法（ACT），可能有助于改善患有MD等慢性疾病的个体的生活质量。
这项嵌套的定性研究纳入了一项随机对照试验，该试验评估了针对MD患者的引导式自助ACT干预措施，以探索他们对该干预措施的体验。对接受ACT治疗的患者进行了半结构化访谈（n = 20）。通过主题分析对数据进行了分析。
有四个总体主题。（1）关于治疗课程是否有助于改善病情的看法：参与者对ACT的期望各不相同。一些参与者对正念持怀疑态度。（2）我能够以不同的方式看待事物：参与者描述了有意义的活动增加、对思想和情绪的认识增强以及对行动问题的接受或适应。一些人描述了人际关系质量的改善和自由感。（3）身心同治：干预后，参与者指出整体医疗保健方法是有益的。（4）干预实施：出于实际原因，远程实施通常被认为是有帮助的，并且让参与者能够坦诚地交谈。参与者表示需要后续课程。
总体而言，该干预措施被认为是可以接受的。建议的改进包括淡化正念的作用并增加后续课程。
