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对韧带松弛患儿的评估。

Evaluation of the child with ligamentous laxity.

作者信息

Agnew P

出版信息

Clin Podiatr Med Surg. 1997 Jan;14(1):117-30.

PMID:9030449
Abstract

Many opportunities for participation in the care of children with ligamentous laxity have been described in this article. The podiatric physician must determine his or her contribution based on knowledge, experience, and interest. Each podiatric physician is not necessarily expected to be familiar with all of the diseases and treatments described here. Novice podiatrists should be mandated to recognize only the presence of ligamentous laxity and be familiar with an appropriate referral pattern. In addition to the previously listed podiatric concerns, Hobson has described some specific concerns in even the most basic podiatric treatment. He recommends the use of skin adherents to avoid wrinkling and tearing the skin of individuals with Ehlers-Danlos syndrome. He also reiterates research that has determined a resistance to local anesthetics in these individuals. He further provides some detail for the manufacture of appropriate orthoses. Continuing education may be obtained through a variety of sources. These may include not only traditional podiatric courses and conferences, but also similar venues offered by clinicians in other specialties. Also, courses and conferences held by organizations with a special interest in these unusual disorders can be educational and rewarding. The author has found interactions with this patient population rewarding. The patients and their families are often exceptionally knowledgeable regarding their illness because most have experienced many years with unsatisfactory medical help and delayed or incorrect diagnoses. Most of these families are also extraordinarily grateful for the concern and interest expressed by the clinician. They are particularly impressed when the health care professional has at least a cursory knowledge of their unusual disorder. As a member of the Ehlers-Danlos National Foundation Medical Advisors Panel, the author has contact with world-renowned geneticists, rheumatologists, and other specialists. The leader of the organization has pointed out that patients have found that podiatric clinics provided during the national meetings are often one of the most appreciated aspects of those meetings. He stated that although podiatrists may not cure the disease, small improvements in the everyday lives of these patients add up to a significant contribution. The author hopes that this article will stimulate further interests in the care and understanding of individuals with ligamentous laxity. It is further hoped that experience with these individuals will translate to the broader population who experience milder disorders of hypermobility.

摘要

本文描述了许多参与韧带松弛患儿护理的机会。足病医生必须根据知识、经验和兴趣来确定自己的贡献。并不要求每位足病医生都熟悉本文所述的所有疾病和治疗方法。新手足病医生只需能够识别韧带松弛的存在,并熟悉适当的转诊模式即可。除了前面列出的足病相关问题外,霍布森还描述了即使在最基本的足病治疗中也存在的一些具体问题。他建议使用皮肤黏附剂,以避免埃勒斯-当洛综合征患者的皮肤起皱和撕裂。他还重申了已确定这些患者对局部麻醉药有耐受性的研究。他进一步详细说明了合适矫形器的制作方法。可以通过多种途径获得继续教育。这些途径不仅可能包括传统的足病课程和会议,还包括其他专科临床医生提供的类似场所。此外,对这些罕见疾病有特殊兴趣的组织举办的课程和会议也可能具有教育意义且收获颇丰。作者发现与这群患者互动很有意义。患者及其家人通常对自己的病情非常了解,因为大多数人多年来都经历过医疗帮助不尽如人意、诊断延迟或错误的情况。这些家庭中的大多数也对临床医生表达的关心和关注格外感激。当医疗保健专业人员至少对他们的罕见疾病有初步了解时,他们会特别印象深刻。作为埃勒斯-当洛全国基金会医学顾问小组的成员,作者与世界知名的遗传学家、风湿病学家和其他专家有联系。该组织的负责人指出,患者发现全国会议期间提供的足病诊所往往是这些会议中最受赞赏的方面之一。他表示,尽管足病医生可能无法治愈这种疾病,但这些患者日常生活中的小改善加起来也是一项重大贡献。作者希望本文能激发对韧带松弛患者护理和理解的进一步兴趣。进一步希望与这些患者的经验能够推广到患有轻度关节过度活动障碍的更广泛人群中。

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