Andrews L B
Chicago-Kent College of Law, USA.
J Am Med Womens Assoc (1972). 1997 Winter;52(1):39-42, 44.
Genetic tests are available for an increasing array of disorders. Although the doctrine of informed consent requires that physicians provide sufficient information to patients in advance of testing and allow them to make decisions in a noncoerced way, some studies have shown that physicians do not provide adequate information about the nature of genetic testing and its risks. Some physicians test patients without their consent. This article recommends that physicians address the limitations on their knowledge about genetics and about life with genetic disorders. It also analyzes how the informed consent process for genetic testing can be improved.
针对越来越多的疾病都可以进行基因检测。尽管知情同意原则要求医生在检测前向患者提供足够的信息,并允许他们以非强制的方式做出决定,但一些研究表明,医生并未就基因检测的性质及其风险提供充分的信息。一些医生在未经患者同意的情况下对其进行检测。本文建议医生应对他们在遗传学知识以及患有基因疾病的生活方面的局限性。它还分析了如何改进基因检测的知情同意程序。