• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

有缺陷的同意:基因检测同意程序中的不足

Compromised consent: deficiencies in the consent process for genetic testing.

作者信息

Andrews L B

机构信息

Chicago-Kent College of Law, USA.

出版信息

J Am Med Womens Assoc (1972). 1997 Winter;52(1):39-42, 44.

PMID:9033172
Abstract

Genetic tests are available for an increasing array of disorders. Although the doctrine of informed consent requires that physicians provide sufficient information to patients in advance of testing and allow them to make decisions in a noncoerced way, some studies have shown that physicians do not provide adequate information about the nature of genetic testing and its risks. Some physicians test patients without their consent. This article recommends that physicians address the limitations on their knowledge about genetics and about life with genetic disorders. It also analyzes how the informed consent process for genetic testing can be improved.

摘要

针对越来越多的疾病都可以进行基因检测。尽管知情同意原则要求医生在检测前向患者提供足够的信息,并允许他们以非强制的方式做出决定,但一些研究表明,医生并未就基因检测的性质及其风险提供充分的信息。一些医生在未经患者同意的情况下对其进行检测。本文建议医生应对他们在遗传学知识以及患有基因疾病的生活方面的局限性。它还分析了如何改进基因检测的知情同意程序。

相似文献

1
Compromised consent: deficiencies in the consent process for genetic testing.有缺陷的同意:基因检测同意程序中的不足
J Am Med Womens Assoc (1972). 1997 Winter;52(1):39-42, 44.
2
[The origin of informed consent].[知情同意的起源]
Acta Otorhinolaryngol Ital. 2005 Oct;25(5):312-27.
3
Unique characteristics of informed consent in clinical genetics and genetic counselling.临床遗传学和遗传咨询中知情同意的独特特征。
Cas Lek Cesk. 2019 Spring;158(1):38-43.
4
American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility.美国临床肿瘤学会政策声明更新:癌症易感性基因检测
J Clin Oncol. 2003 Jun 15;21(12):2397-406. doi: 10.1200/JCO.2003.03.189. Epub 2003 Apr 11.
5
Physicians overestimate patient's knowledge of the process of informed consent: a cross-sectional study.医生高估了患者对知情同意过程的了解:一项横断面研究。
Med Glas (Zenica). 2011 Feb;8(1):39-45.
6
Informed consent for BRCA1 and BRCA2 testing: what clinicians should know about the process and content.
J Am Med Womens Assoc (1972). 2000 Fall;55(5):275-9.
7
[Informed consent: going through the motions?].[知情同意:只是走过场?]
Harefuah. 2014 Feb;153(2):115-8, 125.
8
Communication and informed consent in elderly people.老年人的沟通和知情同意。
Minerva Anestesiol. 2012 Feb;78(2):236-42. Epub 2011 Nov 18.
9
Ethical communication in clinical trials. Issues faced by data managers in obtaining informed consent.临床试验中的伦理沟通。数据管理者在获取知情同意书时面临的问题。
Cancer. 2002 Dec 1;95(11):2414-21. doi: 10.1002/cncr.10994.
10
Informed consent in direct-to-consumer personal genome testing: the outline of a model between specific and generic consent.直接面向消费者的个人基因组检测中的知情同意:特定同意与一般同意之间的模式概述。
Bioethics. 2014 Sep;28(7):343-51. doi: 10.1111/bioe.12004. Epub 2012 Nov 8.