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为遗传性代谢紊乱患者提供营养支持的营养师的职责。

Functions of dietitians providing nutrition support to patients with inherited metabolic disorders.

作者信息

Acosta P B, Ryan A S

机构信息

Ross Products Division, Abbott Laboratories, Columbus, OH 43215, USA.

出版信息

J Am Diet Assoc. 1997 Jul;97(7):783-6; quiz 787-8, 824. doi: 10.1016/S0002-8223(97)00192-2.

Abstract

This article examines functions of dietitians who provide nutrition services to patients with inherited metabolic disorders. A survey questionnaire was developed and pilot-tested in a sample of dietitians, revised, and mailed to all dietitians in the United States who treat patients with inherited metabolic disorders. One hundred forty-two usable questionnaires were returned. Descriptive statistics were used to calculate response frequency. The highest academic degree attained by 37% of the dietitians was a bachelor's degree; 58% had earned a master's degree and 5% a doctorate. Dietitians provided nutrition services during diagnosis, critical illness, and long-term care. More than 90% of the dietitians performed these functions: evaluated nutrition status; prepared, implemented, and evaluated the nutritional support plan; revised the nutrition support plan as needed; monitored dietary compliance; coordinated care with other agencies; developed materials and educated parents, caregivers, and patients about the nutrition support plan; and recorded information in the medical record. Without nutrition support, patients with inherited metabolic disorders may become mentally retarded, experience neurologic or metabolic crises, or die.

摘要

本文探讨了为患有遗传性代谢紊乱疾病的患者提供营养服务的营养师的职能。设计了一份调查问卷,并在一组营养师样本中进行了预测试,随后进行了修订,并邮寄给美国所有治疗遗传性代谢紊乱疾病患者的营养师。共收到142份有效问卷。使用描述性统计方法计算回复频率。37%的营养师获得的最高学历是学士学位;58%拥有硕士学位,5%拥有博士学位。营养师在诊断、危重病和长期护理期间提供营养服务。超过90%的营养师履行以下职能:评估营养状况;制定、实施和评估营养支持计划;根据需要修订营养支持计划;监测饮食依从性;与其他机构协调护理;编写资料并就营养支持计划对家长、护理人员和患者进行教育;以及在病历中记录信息。没有营养支持,患有遗传性代谢紊乱疾病的患者可能会智力发育迟缓、经历神经或代谢危机,甚至死亡。

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