[Quality of life in home ventilation].

BACKGROUND

The purpose of this study is to assess quality of life in patients with chronic respiratory failure who require home mechanical ventilation (HMV).

PATIENTS AND METHODS

Patients with COPD (n = 20), scoliosis (n = 20), neuromuscular diseases (n = 20) and others (n = 7) were examined. A specific questionnaire containing forms for the patient, the physician and for the relatives was developed according to the formulation of the question (Fragebogen zur chronischen Heimbeatmung = FCH, Interview zur chronischen Heimbeatmung = ICH). In addition to that the Hospital Anxiety and Depression Scale (HAD) and the Asthma Quality of Life Questionnaire were used. Arterial blood gas tensions, pulmonary function and inspiratory mouth occlusion pressure were studied.

RESULTS

Quality of life in patients with scoliosis and neuromuscular diseases is improved during HMV compared to patients with COPD who especially are impaired with regard to psychological and functional conditions. Correlations with physiological parameters and with the compliance could not be observed.

CONCLUSION

Despite progression of the disease HMV enhances quality of life in patients with scoliosis and neuromuscular diseases. The outcome in COPD is less evident. Therefore the indication must be considered more critically.