Fitzgerald J
Queensland Advocacy Incorporated, Brisbane, Australia.
Disabil Rehabil. 1997 Oct;19(10):407-13. doi: 10.3109/09638289709166565.
Science, bureaucracy and organized religion have played an important role in shaping the construction of disability--as the broken, incomplete and imperfect self, as the case requiring management, and as the object of pity and charity. This paper looks critically at the way in which concepts such as the medical model of disability and the evolving genetic model of disability have shaped the way in which we construct disability and, consequently, the way in which we treat people with disability--through isolation, segregation and elimination. These constructions of disability also operate to define and confine the spiritual journey of people with disability. The author argues for a more integrated conception of self, based not upon an empirical, mechanized and bureaucratic world-view, but upon an integrated, interdependent and holistic view of self and society.
科学、官僚机构和有组织的宗教在塑造残疾的建构方面发挥了重要作用——将残疾视为破碎、不完整和有缺陷的自我，视为需要管理的案例，以及视为怜悯和慈善的对象。本文批判性地审视了诸如残疾医学模式和不断演变的残疾基因模式等概念如何塑造了我们建构残疾的方式，进而塑造了我们对待残疾人的方式——通过隔离、 segregation and elimination（此处英文有误，推测是“segregation and exclusion”，即隔离和排斥）。这些残疾的建构也在界定和限制残疾人的精神之旅。作者主张一种更综合的自我观念，其基础不是基于经验主义、机械化和官僚主义的世界观，而是基于自我与社会的综合、相互依存和整体的观点。
