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乳腺癌幸存者的生活质量:对发展支持服务的启示

Quality of life in breast cancer survivors: implications for developing support services.

作者信息

Ferrell B R, Grant M M, Funk B M, Otis-Green S A, Garcia N J

机构信息

City of Hope Comprehensive Cancer Center, Duarte, CA, USA.

出版信息

Oncol Nurs Forum. 1998 Jun;25(5):887-95.

PMID:9644705
Abstract

PURPOSE/OBJECTIVES: Quality of life (QOL) is becoming more important in regard to breast cancer as treatment advances extend the period of survivorship. The purpose of this article is to share the results of a cancer center's attempt to evaluate the QOL needs of breast cancer survivors in order to provide improved supportive-care services.

DESIGN

Descriptive mailed survey.

SETTING

A medical center in southern California.

SAMPLE

A random sample of breast cancer survivors (N = 298).

METHODS

Breast cancer survivors completed a mailed survey that included major outcome variables of QOL and pain. Subjects were stratified by three age groups: younger than 40 years, 40-60 years, and older than 60 years.

MAIN RESEARCH VARIABLES

QOL subscales (physical, psychological, social, and spiritual well-being) and overall QOL score and pain as assessed by the Brief Pain Inventory.

FINDINGS

Results indicated continued physical demands of breast cancer, including fatigue and pain, as well as psychological burdens related to fear of breast cancer recurrence and anxiety. The social well-being domain indicated some unique aspects of QOL when applied to breast cancer survivorship such as the fear of breast cancer in female relatives. The spiritual well-being domain illustrated the unique QOL aspects of life-threatening illness such as living with uncertainty and maintaining hope. Breast cancer survivors also reported positive aspects and life changes after successfully facing breast cancer.

CONCLUSIONS

Breast cancer survivors experience many demands of illness across the physical, psychological, social, and spiritual domains.

IMPLICATIONS FOR NURSING PRACTICE

The study's findings can be useful in directing cancer centers' efforts to provide comprehensive care for breast cancer survivors. Nurses play a critical role in leading these efforts for supportive-care services intended to improve the QOL of breast cancer survivors.

摘要

目的/目标:随着乳腺癌治疗进展延长了生存期,生活质量(QOL)在乳腺癌领域变得愈发重要。本文旨在分享一家癌症中心为评估乳腺癌幸存者的生活质量需求以提供改善的支持性护理服务所做尝试的结果。

设计

描述性邮寄调查。

地点

南加州的一家医疗中心。

样本

乳腺癌幸存者的随机样本(N = 298)。

方法

乳腺癌幸存者完成一份邮寄调查问卷,其中包括生活质量和疼痛的主要结果变量。受试者按三个年龄组分层:40岁以下、40 - 60岁和60岁以上。

主要研究变量

生活质量子量表(身体、心理、社会和精神健康)、总体生活质量得分以及由简明疼痛量表评估的疼痛。

结果

结果表明乳腺癌存在持续的身体需求,包括疲劳和疼痛,以及与对乳腺癌复发的恐惧和焦虑相关的心理负担。社会健康领域表明,在应用于乳腺癌幸存者时生活质量有一些独特方面,比如女性亲属对乳腺癌的恐惧。精神健康领域说明了危及生命疾病的独特生活质量方面,如生活在不确定性中并保持希望。乳腺癌幸存者还报告了成功面对乳腺癌后的积极方面和生活变化。

结论

乳腺癌幸存者在身体、心理、社会和精神领域经历了许多疾病需求。

对护理实践的启示

该研究结果有助于指导癌症中心为乳腺癌幸存者提供全面护理的工作。护士在引领这些旨在改善乳腺癌幸存者生活质量的支持性护理服务工作中发挥着关键作用。

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