Deatrick J A, Brennan D, Cameron M E
School of Nursing, University of Pennsylvania, Philadelphia 19104-6096, USA.
Nurs Res. 1998 Jul-Aug;47(4):205-10. doi: 10.1097/00006199-199807000-00005.
Mothers with multiple sclerosis (MS) often face fatigue and episodic exacerbations during their child-rearing years. These problems affect their support of their children, including physical affection. Children, depending on their age and gender, may or may not understand the changes.
To increase knowledge about mothers with MS concerning the relationship of fatigue and functional status to the perception of physical affection with their children, their perceptions of physical affection with their children in relation to exacerbation of their symptoms and the age and gender of their children, and the children's perceptions of their mothers' physical affection in relation to the children's age and gender and exacerbations in their mothers' symptoms.
Thirty-five mothers with relapsing-remitting MS and a child of each mother were studied, using interviews and questionnaires.
Functional status and fatigue were not significant predictors of physical affection during an exacerbation. When the mothers' symptoms were stable, perceptions of mothers and children with respect to maternal physical affection were similar. Significant changes were reported in both the mothers' perceptions of their physical affection and the children's perceptions of their mothers' physical affection during exacerbations. There was a significant difference between the perceptions of the mothers and children regarding the magnitude of that change. Mothers significantly underestimated changes in their physical affection.
Physical affection was selected as an important aspect of family functioning that could be affected by characteristics of illness, including exacerbations, fatigue, and functional status. However, fatigue and functional status did not explain the perception of physical affection during an exacerbation.
患有多发性硬化症（MS）的母亲在育儿期间常常面临疲劳和间歇性病情加重的情况。这些问题会影响她们对孩子的支持，包括身体上的关爱。孩子根据年龄和性别，可能理解也可能不理解这些变化。
增加对患有MS的母亲的了解，内容涉及疲劳和功能状态与她们对孩子身体关爱的感知之间的关系、她们对孩子身体关爱的感知与自身症状加重以及孩子年龄和性别的关系，以及孩子对母亲身体关爱的感知与孩子年龄和性别以及母亲症状加重之间的关系。
对35名复发缓解型MS母亲及其每个孩子进行研究，采用访谈和问卷调查的方式。
病情加重期间，功能状态和疲劳并不是身体关爱的显著预测因素。当母亲症状稳定时，母亲和孩子对母亲身体关爱的感知相似。在病情加重期间，母亲对自身身体关爱的感知和孩子对母亲身体关爱的感知均有显著变化。母亲和孩子对这种变化程度的感知存在显著差异。母亲显著低估了她们身体关爱的变化。
身体关爱被视为家庭功能的一个重要方面，可能会受到疾病特征的影响，包括病情加重、疲劳和功能状态。然而，疲劳和功能状态并不能解释病情加重期间对身体关爱的感知。
