Stajduhar K I
School of Nursing, University of British Columbia, Vancouver.
Can J Nurs Res. 1997 Winter;29(4):73-86.
The purpose of this grounded theory study was to describe the experience of HIV/AIDS family caregiving in the palliative phase. Seven in-depth interviews were conducted and analyzed using the constant comparative method. The analysis resulted in a conceptualization of HIV/AIDS family caregiving. This paper describes the "personal work" of caregivers, including reconciling that a loved one would die, making life-and-death decisions, and letting go. The nature of support received to attend to this work is highlighted, with attention to its influences on HIV/AIDS caregiver bereavement. The findings of this study provide some insights into the HIV/AIDS family caregiver experience and reveal a significant need for interventions designed to support caregivers in establishing the mechanisms required for bereavement resolution. The need for the creation of supportive networks for HIV/AIDS caregivers cannot be overstated. Further research is required to help clarify and expand on how social support might have an effect on HIV/AIDS family caregiver bereavement. With this knowledge, health-care providers will be better prepared to anticipate difficulties faced by caregivers, plan appropriate interventions to address these difficulties, prevent future problems, and plan care based on theory and research.
这项扎根理论研究的目的是描述艾滋病临终阶段家庭护理的经历。研究通过持续比较法对7次深度访谈进行了分析。分析得出了艾滋病家庭护理的概念。本文描述了护理人员的“个人工作”，包括接受亲人即将离世的现实、做出生死抉择以及放手。文中强调了为开展这项工作所获得的支持的性质，并关注其对艾滋病护理人员丧亲之痛的影响。本研究的结果为艾滋病家庭护理人员的经历提供了一些见解，并揭示了迫切需要开展干预措施，以支持护理人员建立解决丧亲之痛所需的机制。为艾滋病护理人员建立支持网络的必要性再怎么强调也不为过。需要进一步的研究来帮助阐明和扩展社会支持如何影响艾滋病家庭护理人员的丧亲之痛。有了这些知识，医疗保健提供者将能更好地准备好预见护理人员面临的困难，规划适当的干预措施来解决这些困难，预防未来的问题，并根据理论和研究来规划护理。
