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从言辞到行动:建立社区对艾滋病相关研究的参与

From rhetoric to action: establishing community participation in AIDS-related research.

作者信息

Lindsey E, Stajduhar K

机构信息

School of Nursing, University of Victoria, British Columbia.

出版信息

Can J Nurs Res. 1998 Spring;30(1):137-52.

PMID:9726187
Abstract

Acquired Immunodeficiency Syndrome (AIDS) has been described as the most challenging disease in modern history. For many people with HIV/AIDS (PWA), issues of appropriate respite care and supported housing are a pressing concern. To meet the housing requirements for PWAs, it is essential to engage this community in determining its own housing needs. To that end, a participatory action research (PAR) investigation was undertaken with the PWA community to ascertain the desirability and feasibility of a supported-living/respite-care community home. PAR has been heralded as an important research methodology in ensuring research relevance and community participation leading to effective change. Although nursing interest in PAR is increasing, there are few nursing examples that describe the process of undertaking PAR. The purpose of this article is to describe, explain, and critique the use of PAR in the case of a supported-living/respite-care home. A PAR framework is presented and the process of conducting PAR is outlined.

摘要

获得性免疫缺陷综合征(艾滋病)被认为是现代史上最具挑战性的疾病。对于许多感染艾滋病毒/艾滋病的人(艾滋病人)来说,适当的临时护理和支持性住房问题是一个紧迫的关切事项。为满足艾滋病人的住房需求,让这个群体参与确定其自身住房需求至关重要。为此,对艾滋病人群体开展了一项参与式行动研究(PAR)调查,以确定支持性生活/临时护理社区之家的可取性和可行性。参与式行动研究被誉为确保研究相关性和社区参与从而带来有效变革的重要研究方法。尽管护理领域对参与式行动研究的兴趣在增加,但很少有护理方面的实例描述开展参与式行动研究的过程。本文旨在描述、解释和评析在支持性生活/临时护理之家案例中参与式行动研究的应用。文中呈现了一个参与式行动研究框架,并概述了开展参与式行动研究的过程。

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