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为绝经后考虑激素治疗的女性提供的决策辅助工具:决策支持框架与评估

A decision aid for women considering hormone therapy after menopause: decision support framework and evaluation.

作者信息

O'Connor A M, Tugwell P, Wells G A, Elmslie T, Jolly E, Hollingworth G, McPherson R, Bunn H, Graham I, Drake E

机构信息

University of Ottawa, School of Nursing, Ontario, Canada.

出版信息

Patient Educ Couns. 1998 Mar;33(3):267-79. doi: 10.1016/s0738-3991(98)00026-3.

Abstract

Although postmenopausal women are advised to consider their values when deliberating about potential benefits and risks of hormone therapy (HRT), feasible, effective methods of decision support in primary care have yet to be established. Using an explicit decision support framework, we developed a self-administered HRT decision aid and evaluated it in a before/after study of 94 women from six family practices. An audiotape guided women through an illustrated booklet including: detailed information about HRT benefits and risks tailored to a woman's clinical risk, and a values clarification exercise to promote informed decision making consistent with personal values. After using the decision aid participants: had better general knowledge and more realistic personal expectations of HRT benefits and risks; and, felt more certain, informed, clear about values, and supported in decision making. Women's values elicited in the clarification exercise were 84% accurate in discriminating between decisions. Women with polarized preferences at baseline did not change their minds, but were better informed. Changes in preferences occurred in the uncertain group, with equal numbers accepting or declining HRT. Most participants found the decision aid comprehensible, acceptable in length and pace, and balanced. Decision aids are useful in preparing women for decision making about this complex, personal issue.

摘要

尽管建议绝经后女性在考虑激素疗法(HRT)的潜在益处和风险时考虑自身价值观,但在初级保健中可行、有效的决策支持方法尚未确立。我们使用一个明确的决策支持框架,开发了一种自我管理的HRT决策辅助工具,并在一项针对来自六个家庭医疗诊所的94名女性的前后对照研究中对其进行了评估。一盘录音带引导女性阅读一本配有插图的小册子,其中包括:根据女性的临床风险量身定制的关于HRT益处和风险的详细信息,以及一项价值观澄清练习,以促进与个人价值观一致的明智决策。使用决策辅助工具后,参与者:对HRT的益处和风险有了更好的一般知识和更现实的个人期望;并且,在决策时感觉更确定、更了解情况、对价值观更清晰,且得到了支持。在澄清练习中引出的女性价值观在区分决策方面的准确率为84%。基线时偏好两极分化的女性没有改变主意,但了解得更清楚了。在不确定组中出现了偏好变化,接受或拒绝HRT的人数相等。大多数参与者认为决策辅助工具易于理解,在长度和节奏上可以接受,且内容平衡。决策辅助工具有助于让女性为就这个复杂的个人问题做出决策做好准备。

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