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加拿大癫痫数据库与登记处。

The Canadian Epilepsy Database and Registry.

作者信息

McLachlan R S

机构信息

London Health Sciences Centre, University of Western Ontario, Canada.

出版信息

Can J Neurol Sci. 1998 Nov;25(4):S27-31. doi: 10.1017/s0317167100034946.

Abstract

Epilepsy encompasses medical, psychological, social and demographic factors which are best studied in large populations. The Canadian Epilepsy Database and Registry (CEDAR) is a comprehensive English language, multicentre epilepsy database which has been developed to study the impact of these and other factors on epilepsy in Canada. In addition, it can be used locally in the clinic for office record keeping, automated printout of a referral letter or graphing seizures and other data over time. The data in CEDAR are similar to what is found in the patient's chart. There are 20 participating centres across Canada which have entered data on over 8000 adult and pediatric epilepsy patients. The information in CEDAR will be available for research purposes to centres entering data as well as to academic researchers, the pharmaceutical industry and government agencies.

摘要

癫痫涵盖了医学、心理、社会和人口统计学等因素,这些因素最好在大规模人群中进行研究。加拿大癫痫数据库和登记处(CEDAR)是一个全面的英语多中心癫痫数据库,旨在研究这些因素以及其他因素对加拿大癫痫的影响。此外,它还可在诊所本地用于办公记录保存、自动打印转诊信或随时间绘制癫痫发作及其他数据图表。CEDAR中的数据与患者病历中的数据相似。加拿大有20个参与中心,已录入了8000多名成人和儿童癫痫患者的数据。CEDAR中的信息将供输入数据的中心以及学术研究人员、制药行业和政府机构用于研究目的。

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