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[系统家庭护理干预应用于残疾儿童出生:对父母适应的影响]

[Systematic family nursing intervention applied to the birth of a disabled child: effects on the parents' adaptation].

作者信息

Pelchat D, Bisson J, Perreault M, Ricard N, Bouchard J M

机构信息

Faculté des Sciences infirmières de l'Université de Montréal.

出版信息

Can J Nurs Res. 1998 Fall;30(3):99-121.

Abstract

This quasi-experimental study evaluated the effectiveness of a new systemic family nursing intervention to facilitate the adaptation of parents with a handicapped child, as well as variations in effectiveness according to the gender of the parent, family income, and type of handicap. Conducted over a 6-month period, the intervention began immediately after birth and included the participation of 198 mothers and fathers of 6-month-old babies with Down syndrome or a cleft lip and/or palate. Half of the group received the intervention, while the other half, constituting the control group, received regular services. Emotional distress was measured, as were various aspects of parental stress. The results confirm the program's effectiveness. Almost all parental stress indicators showed less stress among parents who received the intervention. For some indicators, the effect of the intervention varied with the parent's gender. No significant correlation was found to exist between the program's effectiveness and family income or type of handicap. These results are discussed in light of the goals of the intervention, various aspects of parental adaptation, and a number of factors that may be linked to the effectiveness of the intervention.

摘要

这项准实验研究评估了一种新的系统性家庭护理干预措施在促进残疾儿童家长适应方面的有效性,以及根据家长性别、家庭收入和残疾类型的有效性差异。该干预措施为期6个月,在孩子出生后立即开始,共有198名患有唐氏综合征或唇腭裂的6个月大婴儿的父母参与,其中一半接受干预,另一半作为对照组接受常规服务。研究测量了情绪困扰以及父母压力的各个方面。结果证实了该项目的有效性。几乎所有父母压力指标都显示,接受干预的父母压力较小。对于某些指标,干预效果因父母性别而异。未发现该项目的有效性与家庭收入或残疾类型之间存在显著相关性。我们根据干预目标、父母适应的各个方面以及可能与干预有效性相关的一些因素对这些结果进行了讨论。

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