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唇腭裂患儿的父母。 (注:原文中“plate”有误,应该是“palate”,即腭裂)

Parents of children with cleft lip and plate.

作者信息

Riski J E

机构信息

Department of Surgery, Duke University Medical Center, Durham, NC 27710.

出版信息

Clin Commun Disord. 1991 Fall;1(3):42-7.

PMID:1844862
Abstract

The preceding literature review and parent interviews are intended to provide novel insight into the stress, anxiety, and fears faced by parents of children born with a cleft lip and palate. Professionals need to be available to assist with the adjustments and transitions that the parents will face and to tailor their interactions to the specific needs of the parents and the child. Several conclusions are apparent. 1. Needs appear to be greatest at times of transition: birth, operation, and school. 2. Feelings of loss and grief may accompany the birth of a child with a cleft. The birth may be marked by the realization that the perfect child is lost and by the grief that this imperfect child must be loved and nurtured. The rearing process is complicated by the parents' own insecurities and can be assisted by positive coping strategies and the support of other parents of children with clefts. 3. Parents may feel uncomfortable discussing aspects of finance and personal fears. The parents interviewed indicated that the fears and concerns expressed here were the very concerns that they do not raise with professionals. 4. Parents are highly variable in their experience and needs. The age of the parents, the extent of the cleft, and familiarity with clefting appear to be major factors in determining how well parents deal with the birth of a child with a cleft. 5. Cleft palate team members have innumerable opportunities to assist parents.(ABSTRACT TRUNCATED AT 250 WORDS)

摘要

之前的文献综述和对家长的访谈旨在为唇腭裂患儿家长所面临的压力、焦虑和恐惧提供全新的见解。专业人员需要随时提供帮助,以协助家长应对他们将面临的调整和转变,并根据家长和孩子的特定需求调整互动方式。几个结论显而易见。1. 在过渡时期需求似乎最大:出生、手术和上学时。2. 唇腭裂患儿的出生可能会伴随着失落和悲伤的情绪。孩子出生时,家长可能会意识到完美的孩子不存在了,并且会因必须去爱和养育这个不完美的孩子而感到悲伤。养育过程因家长自身的不安全感而变得复杂,积极的应对策略以及其他唇腭裂患儿家长的支持会有所帮助。3. 家长可能在讨论经济方面的问题和个人恐惧时会感到不自在。接受访谈的家长表示,这里所表达的恐惧和担忧正是他们不会向专业人员提及的。4. 家长的经历和需求差异很大。家长的年龄、腭裂的程度以及对腭裂的熟悉程度似乎是决定家长应对唇腭裂患儿出生情况好坏的主要因素。5. 腭裂治疗团队成员有无数机会帮助家长。(摘要截选至250词)

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