Bunzel B, Laederach-Hofmann K, Schubert M T
University Hospital Vienna, Department of Cardiothoracic Surgery, Austria.
Transpl Int. 1999;12(1):33-41.
Terminal heart disease affects not only the patient, but also members of the patient's family, and especially the spouse. The aim of this prospective study of 26 couples was to collect information about the impact of heart transplantation on the partner relationship. Data were collected from patients and spouses when the patients were placed on the waiting list for transplantation, 1 year postoperatively, and 5 years postoperatively. The Family Assessment Measure (FAM III), a self-report instrument that provides quantitative indices of family functioning on seven interacting dimensions, was used. In the course of the transplant process, both patients and spouses reported a significant deterioration in the partner relationship in general. While patients perceived only one clear-cut point of conflict communication about emotions - as crucial, the spouses reported a significant worsening in role performance, communication, emotional involvement, and values and norms. These changes were discernible 1 year after transplantation and persisted for at least 5 years. We conclude that heart transplantation has a significant negative impact on the partner relationship 1-5 years after transplantation. Consequently, more attention should be paid to all aspects of the partner relationship in a holistic approach to the treatment of heart transplant recipients and their partners.
终末期心脏病不仅影响患者本人，还会影响其家庭成员，尤其是配偶。这项针对26对夫妇的前瞻性研究旨在收集有关心脏移植对伴侣关系影响的信息。在患者被列入移植等待名单时、术后1年和术后5年，从患者及其配偶那里收集数据。使用了家庭评估量表（FAM III），这是一种自我报告工具，可在七个相互作用的维度上提供家庭功能的定量指标。在移植过程中，患者和配偶均报告伴侣关系总体上显著恶化。患者仅将关于情绪的一个明确的冲突沟通点视为关键，而配偶则报告在角色表现、沟通、情感投入以及价值观和规范方面显著恶化。这些变化在移植后1年即可察觉，并持续至少5年。我们得出结论，心脏移植在移植后1至5年对伴侣关系有显著负面影响。因此，在全面治疗心脏移植受者及其伴侣时，应更加关注伴侣关系的各个方面。
