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“没有我参与,就没有与我相关的事”:针对精神疾病消费者/幸存者自助/互助组织开展的参与式行动研究

"Nothing about me, without me": participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors.

作者信息

Nelson G, Ochocka J, Griffin K, Lord J

机构信息

Department of Psychology, Wilfrid Laurier University, Waterloo, Ontario, Canada.

出版信息

Am J Community Psychol. 1998 Dec;26(6):881-912. doi: 10.1023/a:1022298129812.

Abstract

Participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors is reviewed. We begin by tracing the origins of and defining both participatory action research and self-help/mutual aid. In so doing, the degree of correspondence between the assumptions/values of participatory action research and those of self-help/mutual aid for psychiatric consumer/survivors is examined. We argue that participatory action research and self-help/mutual aid share four values in common: (a) empowerment, (b) supportive relationships, (c) social change, and (d) learning as an ongoing process. Next, selected examples of participatory action research with psychiatric consumer/survivor-controlled self-help/mutual aid organizations which illustrate these shared values are provided. We conclude with recommendations of how the key values can be promoted in both the methodological and substantive aspects of future participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors.

摘要

本文回顾了针对精神疾病消费者/幸存者自助/互助组织开展的参与式行动研究。我们首先追溯参与式行动研究以及自助/互助的起源并对其进行定义。在此过程中,考察了参与式行动研究的假设/价值观与精神疾病消费者/幸存者自助/互助的假设/价值观之间的契合程度。我们认为,参与式行动研究和自助/互助共有四个共同价值观:(a) 赋权,(b) 支持性的关系,(c) 社会变革,以及 (d) 学习是一个持续的过程。接下来,提供了一些参与式行动研究的实例,这些研究与由精神疾病消费者/幸存者控制的自助/互助组织相关,用以说明这些共同价值观。我们最后提出建议,说明如何在未来针对精神疾病消费者/幸存者自助/互助组织的参与式行动研究的方法和实质方面促进这些关键价值观。

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