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关怀临终者。为做出临终治疗决策的患者的护理人员提供实用指南。

Ministering to persons who face death. Practical guidance for care givers of persons making end-of-life treatment decisions.

作者信息

Taylor C

机构信息

Georgetown University Medical Center, Washington, DC.

出版信息

Health Prog. 1994 May;75(4):58-62.

PMID:10133753
Abstract

It is time care givers learn how to minister effectively and sensitively to those making end-of-life treatment decisions. To do so, care givers need to be aware of the various meanings death and dying hold. Culture, religion, past experiences with death and dying, and current situations can all influence the way persons perceive death and dying. Sensitivity to who the patient and family are, to how they perceive the disease or illness, and to how this perception influences their ability to achieve their life goals is a critical care-giving skill. Sensitivity, however, need not result in value neutrality or tolerance. Care givers should not be mindless executors of patient or family demands. Care givers must learn to talk honestly with patients and families about how a particular disease is most likely to progress and about the types of decisions they are likely to need to make. And then care givers need to present options, remaining sensitive to the patients' beliefs, values, and interests. Persons who care for the dying will face three types of patients, who will require different types of responses. The three types are patients who welcome death, patients who accept death, and patients who fight death. For all types of patients, care givers must keep the care patient centered and responsive to patients' priorities; facilitate informed decision making; promote communication among the patient, family, and healthcare team; support autonomous decision making; mediate conflicts; and offer spiritual counseling.

摘要

现在是护理人员学习如何有效且体贴地照顾那些做出临终治疗决定的人的时候了。要做到这一点,护理人员需要意识到死亡和濒死有着各种各样的意义。文化、宗教、过去对死亡和濒死的经历以及当前的状况,都会影响人们对死亡和濒死的认知方式。对患者及其家人是谁、他们如何看待疾病、以及这种认知如何影响他们实现生活目标的能力保持敏感,是一项关键的护理技能。然而,敏感并不意味着价值中立或一味容忍。护理人员不应盲目执行患者或家属的要求。护理人员必须学会与患者及其家属坦诚地谈论某种特定疾病最可能的发展情况,以及他们可能需要做出的决定类型。然后,护理人员需要提供选择,同时对患者的信仰、价值观和兴趣保持敏感。照顾临终患者的人会面对三种类型的患者,他们需要不同类型的应对方式。这三种类型分别是欢迎死亡的患者、接受死亡的患者和抗拒死亡的患者。对于所有类型的患者,护理人员都必须以患者为中心进行护理,并响应患者的优先事项;促进明智的决策制定;推动患者、家属和医疗团队之间的沟通;支持自主决策;调解冲突;并提供精神咨询。

相似文献

1
Ministering to persons who face death. Practical guidance for care givers of persons making end-of-life treatment decisions.关怀临终者。为做出临终治疗决策的患者的护理人员提供实用指南。
Health Prog. 1994 May;75(4):58-62.
2
Changing the culture of dying. A new awakening of spirituality in America heightens sensitivity to needs of dying persons.改变死亡文化。美国灵性的新觉醒提高了对垂危者需求的敏感度。
Health Prog. 1996 Nov-Dec;77(6):16-20.
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Care of the dying: a Catholic perspective. Part IV: Theological, moral, and pastoral response--the transformation of suffering. Catholic Health Association.临终关怀:天主教视角。第四部分:神学、道德及牧灵回应——苦难的转化。天主教健康协会。
Health Prog. 1993 Jun;74(5):46-54.
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Care of the dying: a Catholic perspective. Part III: Clinical context--good palliative care eases the dying process. Catholic Health Association.临终关怀:天主教视角。第三部分:临床背景——优质的姑息治疗可缓解临终过程。天主教健康协会。
Health Prog. 1993 May;74(4):22-6, 31.
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Improving end-of-life care in the intensive care unit: what's to be learned from outcomes research?改善重症监护病房的临终关怀:从结局研究中能学到什么?
New Horiz. 1998 Feb;6(1):110-8.
6
Changing the way we care for the dying.改变我们照顾临终者的方式。
Health Prog. 1994 Mar;75(2):48-9, 52.
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A better approach to care of the dying. Catholic healthcare and the Catholic community can present an alternative to physician-assisted suicide.一种更好的临终关怀方式。天主教医疗保健机构和天主教社区可以提供一种替代医生协助自杀的方案。
Health Prog. 1998 Sep-Oct;79(5):54-9.
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Care of the dying: a Catholic perspective. Part I, Cultural context: a CHA document challenges care givers to define appropriate care for the dying.临终关怀:天主教视角。第一部分,文化背景:一份CHA文件促使护理人员界定对临终者的恰当护理。
Health Prog. 1993 Mar;74(2):34-8, 70.
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Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer.父母对患癌濒死儿童的症状、生活质量、死亡特征及临终决策的看法。
Klin Padiatr. 2008 May-Jun;220(3):166-74. doi: 10.1055/s-2008-1065347.
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Danger signs. Coalition points to causes and consequences of inadequate care of the dying.危险信号。联盟指出临终护理不足的原因及后果。
Health Prog. 1996 Mar-Apr;77(2):50-4.

引用本文的文献

1
Death, dying and informatics: misrepresenting religion on MedLine.死亡、临终与信息学:医学在线数据库中对宗教的错误表述
BMC Med Ethics. 2005 Jul 1;6:E6. doi: 10.1186/1472-6939-6-6.