Taylor C
Georgetown University Medical Center, Washington, DC.
Health Prog. 1994 May;75(4):58-62.
It is time care givers learn how to minister effectively and sensitively to those making end-of-life treatment decisions. To do so, care givers need to be aware of the various meanings death and dying hold. Culture, religion, past experiences with death and dying, and current situations can all influence the way persons perceive death and dying. Sensitivity to who the patient and family are, to how they perceive the disease or illness, and to how this perception influences their ability to achieve their life goals is a critical care-giving skill. Sensitivity, however, need not result in value neutrality or tolerance. Care givers should not be mindless executors of patient or family demands. Care givers must learn to talk honestly with patients and families about how a particular disease is most likely to progress and about the types of decisions they are likely to need to make. And then care givers need to present options, remaining sensitive to the patients' beliefs, values, and interests. Persons who care for the dying will face three types of patients, who will require different types of responses. The three types are patients who welcome death, patients who accept death, and patients who fight death. For all types of patients, care givers must keep the care patient centered and responsive to patients' priorities; facilitate informed decision making; promote communication among the patient, family, and healthcare team; support autonomous decision making; mediate conflicts; and offer spiritual counseling.
现在是护理人员学习如何有效且体贴地照顾那些做出临终治疗决定的人的时候了。要做到这一点,护理人员需要意识到死亡和濒死有着各种各样的意义。文化、宗教、过去对死亡和濒死的经历以及当前的状况,都会影响人们对死亡和濒死的认知方式。对患者及其家人是谁、他们如何看待疾病、以及这种认知如何影响他们实现生活目标的能力保持敏感,是一项关键的护理技能。然而,敏感并不意味着价值中立或一味容忍。护理人员不应盲目执行患者或家属的要求。护理人员必须学会与患者及其家属坦诚地谈论某种特定疾病最可能的发展情况,以及他们可能需要做出的决定类型。然后,护理人员需要提供选择,同时对患者的信仰、价值观和兴趣保持敏感。照顾临终患者的人会面对三种类型的患者,他们需要不同类型的应对方式。这三种类型分别是欢迎死亡的患者、接受死亡的患者和抗拒死亡的患者。对于所有类型的患者,护理人员都必须以患者为中心进行护理,并响应患者的优先事项;促进明智的决策制定;推动患者、家属和医疗团队之间的沟通;支持自主决策;调解冲突;并提供精神咨询。