Seiffert J E
North American Association of Central Cancer Registries, Sacramento, CA, USA.
Top Health Inf Manage. 1997 Feb;17(3):35-44.
Lack of standardization in data items, definitions, and codes in cancer registries has complicated analyses of pooled cancer data and has limited sharing of methods and software. The North American Association of Central Cancer Registries (NAACCR) has successfully developed and implemented extensive standards for data items and processes used by cancer registries in the United States and Canada. The article describes NAACCR's approach to achieving concensus and facilitating adoption of standards by combining volunteer and staff efforts, including broad-based representation in committees and providing shared automated software. Specific standards and their rationales are provided.
癌症登记处数据项、定义和编码缺乏标准化，使得汇总癌症数据的分析变得复杂，并限制了方法和软件的共享。北美中央癌症登记协会（NAACCR）已成功制定并实施了针对美国和加拿大癌症登记处使用的数据项和流程的广泛标准。本文介绍了NAACCR通过结合志愿者和工作人员的努力来达成共识并促进标准采用的方法，包括委员会中有广泛的代表性以及提供共享的自动化软件。文中还提供了具体标准及其基本原理。
