Fraser C
Majorie K. Unterberg School of Nursing and Health Studies at Monmouth University, West Long Branch, New Jersey, USA.
J Neurosci Nurs. 1999 Feb;31(1):9-16. doi: 10.1097/01376517-199902000-00002.
The purpose of this study was to describe the experience of transition for a daughter caregiver of a stroke survivor. A phenomenologic, longitudinal case study of a woman in her late twenties provided the means by which the lived experience of transition could be studied and understood. The eleven unstructured, audiotaped interviews took place approximately every two weeks over a six and a half month period. They began six weeks after her mother's stroke and lasted until three months after her mother returned home, when life became more organized and predictable for a time. The interviews were transcribed verbatim and analyzed according to a modified version of Colaizzi's descriptive phenomenologic methodology. Since there was a temporal consideration, a time-ordered matrix was used to identify themes over time. The themes that emerged over time included: (a) changing relationships, (b) becoming a caregiver then stepping back, (c) enduring emotional turbulence, (d) taking one day at a time and (e) struggling to hang onto hope. Integration of the themes provided an exhaustive description. The experience of transition was a process that involved disruptions in close relations and daily living. The connection to a network of relationships changed to disconnection, and the fabric of interrelated lives began to unravel. The many sensations experienced were different and conflicting, revealing a rapidly changing perception of the world. An unknown future threatened to become overwhelming. Focusing on the present helped to quell the turbulent sensations experienced. An unknown future temporarily provided the opportunity to hope that daily life could once again become familiar and comfortable. The extent and object of hope changed over time. A pattern of chaos exemplified the process of transition. The passage of time revealed that life as it was known before the transition had changed. A new way of being in the world was experienced.
本研究的目的是描述中风幸存者女儿作为照顾者的角色转变经历。对一位快三十岁女性进行的现象学纵向案例研究，为研究和理解角色转变的实际经历提供了途径。在六个半月的时间里，大约每两周进行一次十一次非结构化的录音访谈。访谈在她母亲中风六周后开始，一直持续到她母亲回家三个月后，那时生活暂时变得更有条理且可预测。访谈内容逐字转录，并根据科莱齐描述性现象学方法的修改版进行分析。由于存在时间因素，使用了一个按时间顺序排列的矩阵来确定不同时期出现的主题。随着时间推移出现的主题包括：（a）关系的变化，（b）成为照顾者然后回归自我，（c）忍受情感动荡，（d）一天天地过，以及（e）努力坚守希望。这些主题的整合提供了详尽的描述。角色转变的经历是一个涉及亲密关系和日常生活中断的过程。与关系网络的联系从连接变为断开，相互关联的生活结构开始瓦解。所经历的诸多感受各不相同且相互冲突，揭示了对世界迅速变化的认知。未知的未来有变得难以承受的危险。专注于当下有助于平息所经历的动荡感受。未知的未来暂时提供了希望，即日常生活能再次变得熟悉和舒适。希望的程度和对象随时间而变化。一种混乱的模式体现了角色转变的过程。时间的推移表明，转变前已知的生活已然改变。一种新的处世方式得以体验。
