Oyesanya Tolu
a Shepherd Center , Atlanta , GA , USA.
Brain Inj. 2017;31(2):151-173. doi: 10.1080/02699052.2016.1225987. Epub 2017 Jan 5.
Patients with acquired brain injury (ABI) and their families have unique experiences and needs during the hospital stay; yet, limited literature exists on this topic. The purpose of this systematic review was to compile and synthesize literature on the experience of patients with ABI and their families during the hospital stay.
A systematic review of qualitative studies was conducted by searching for studies from seven databases. Content analysis was used to analyse and synthesize studies' findings separately for the patient and family experience.
The initial search provided 2871 records. Ultimately, 11 studies relevant to the research question were included in this review. No studies were excluded based on critical quality appraisal. Findings on the patient experience showed patients had negative perceptions of the rehabilitation environment and a perceived need for information. Findings on the family experience included difficulty adjusting after the patient's injury, a desire to be involved in the patient's care, mixed feelings about staff support and a high perceived need for information.
Findings provide awareness for healthcare providers on the multifaceted experiences of patients with ABI and their families during the hospital stay, strategies to make care more patient- and family-centred and directions for future research.
获得性脑损伤（ABI）患者及其家属在住院期间有独特的经历和需求；然而，关于这一主题的文献有限。本系统评价的目的是汇编和综合有关ABI患者及其家属住院期间经历的文献。
通过检索七个数据库中的研究进行定性研究的系统评价。采用内容分析法分别对患者和家属的经历进行分析和综合研究结果。
初步检索得到2871条记录。最终，本评价纳入了11项与研究问题相关的研究。基于严格的质量评估，没有研究被排除。患者经历的研究结果表明，患者对康复环境有负面看法，且认为需要信息。家属经历的研究结果包括患者受伤后难以适应、希望参与患者护理、对工作人员支持的复杂感受以及对信息的高度需求。
研究结果使医疗服务提供者了解ABI患者及其家属住院期间的多方面经历、使护理更以患者和家属为中心的策略以及未来研究的方向。
